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There has to be more 'up' days than 'down' days....

by Claire17. February 2014 16:27

 

It was Valentines Day on Friday and cupid doesn’t have to do much around here for the love to be flowing. Pete and I decided not to go to town on gifts and meals etc, so after a very busy day for Pete and a highly emotional week for me, we were happy just to have a cuddle watching a comedy on the sofa. But in true Bear style, he bought me a bunch of red roses and prepared a lovely rose bath complete with red rose petals. Bless him. He never wants anything in return but loves to spoil me rotten. I then slept like a log. Thankfully I don’t lose sleep when stressed, probably due to the big Bear arm that keeps me safe during the midnight hours.

The weekend was great, dressing up and going out with friends, eating delicious vegetarian Thai food and having so many laughs. Sunday my mum arrived and we prepared bacon butties for a lounge full of men watching football. Good times...

But last week I have to say I was having a hard time. Thursday I had a meltdown. I have been trying to organise going to Germany for more treatments. In a number of emails it was transpiring that I couldn’t have an appointment for the next few weeks which is when I figured it would be best to travel. I would have a good blood count as chemo would have ended and I wanted to get a treatment in before I go for GcMAF (which I have been told is very complimentary to immunotherapy). I was given dates to have leukapheresis (full blood taking) again. I couldn’t understand it as I had enough blood taken when I went for treatment in November. I was then informed they had started using my blood as they believed I would be there today! I was so confused as to how they would think that when I hadn’t given my scan results until Tuesday afternoon?!  Then nothing. Communications went cold and I was left dangling. I was so stressed and upset?! So many questions unanswered and desperate to get something booked I decided I simply couldn’t deal with it anymore and felt at my wits end. I offloaded to Pete who sent a very well worded email and we finally got a reply that evening and things started to become a little clearer. I know I am hard work and high maintenance but I felt like everything was conspiring against me.

This had a knock on effect for me and I couldn’t pick myself up. I had a bad day to say the least. I felt wrecked and my thoughts were dragging me down. I kept thinking that options were running out and  what had I changed in the last six months that has meant the canSer is still growing? I might have even gone as far back as thinking, 'why me?' (You know it’s really bad when that thought creeps in)

I had a coaching call for my health coaching course to the U.S Thursday evening and I had a heart to heart with my coach. Ever honest I told her I was feeling low and how it isn’t like me. She was so supportive and made me feel much better but she could hear the stress in my voice to the point where I was trying to catch my breath. Sometimes I wonder if putting it all in my blog scares people and if it’s a little too much information but my coach suggested that it could be good for me. So here I am telling the world how I feel.

You see, I have bad days too and getting less than good news really does have a knock on effect. Yesterday despite the weather being amazing, having a lovely time with my man and having the pleasure of mum arriving for the week I felt discomknocerated. (Great word right? Pete taught me it.) I felt unsettled. I couldn’t put my finger on it and I am having trouble releasing worrying thoughts.

I am trying to use my thoughts to focus on the canSer going and getting smaller but I also feel not giving it too much thought is a really positive thing. I don’t want to get embroiled in worrying and looking for a resolve. I want to live my life. But if I am being really honest then I should say that I keep having really morbid thoughts and flashes of what will be if I die. Now I know we will all die but I mean I really do feel that my survival is being threatened and I am now really worried that I may not make it to my 40th birthday! I know crazy right?! I have never doubted myself and I believe my existence will definitely be for more than five years. But this has really worried me. I really felt so settled before. My plan was solid, I was on top of the canSer and as long as I could keep it under wraps, control it, that I would be here for many years. As I keep saying I feel great. If I can continue to feel that way then there is nothing to worry about. But I am worried. I am so concerned as to how quickly health can change. I know from speaking to people, I have seen it and I also receive emails from people I have only just been in contact with who sadly have passed away so suddenly. Mortality is such a weird thing. I don’t want to spend my time worrying about this.

But sometimes I just have to say it. It sucks. I am thirty eight years old and I want to be a little bit ignorant and revel in the ignorance that I should be alive for another fifty years! And I guess who’s to say I won’t be. We are all going to die. I just guess that I feel like I am being presented with death all too soon. I suppose sometimes I feel a bit jealous that other people don’t have this to think about. I just want to live! And there we go back to being me again. There is nothing stopping me from living. In fact if I don’t want to wish for the worst then living is exactly what I need to do.

It’s like having therapy, putting it in words on here. My positive nature always shines through and sense prevails. I know what I need to do and I know I have so many more options. I needn’t worry about what may or may not happen. I wonder if I am already assuming the next lot of treatment I am booked to have, will not work. Part of me thinks that, maybe. Just a little. I like to think that I am just planning ahead for every eventuality. Others could see it as being negative.

So that’s that. I am plodding on and trying my best. I hope that I am not just going through the motions. Every supplement, juice, exercise, stretch, positive thought and plan, I hope is having an effect at elongating my life. I have never ever listened to the doctors when they told me it was incurable. But sometimes it hits me like a train. I am afraid of getting ill and dying. There I said it. Sometimes I like to have a good old cry. But then I am a girl. And we cry real good. At nothing mostly. An advert on TV or a cute you tube video. But I cry because I want this thing to stop. I have had enough of this living nightmare and I don’t want to put my loved ones through this anymore.

But I can’t make it stop. No more than I can make time stop. I can only do what I can do. That is, look after myself, love as much as possible and keep trying because there is no other option. I am not about to lie down and give up. As long as I have the energy and breath in my body I will live my life as happy and as full as possible. I urge everyone to do the same. Never give up and remember there has to be more ‘up’ days than ‘down’ ones. It puts everything into perspective.

The moon looked beautiful last night. I can’t wait to see it again tonight. There, the little things mean so much more when you put it in perspective. Be grateful, be happy and love as much as you can. That’s a good motto to live by I think?

Right now that’s off my chest I can move forward.... Thanks for listening. X

 

 

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Beauty despite cancer...

by Claire13. February 2014 14:31

 

I have been speaking with many other TNBC survivors and have been feeling comforted to know that I am not alone. I feel empowered to stay positive and keep smiling.

My friend suggested I write a letter to the Universe thanking it three times for something. I have thanked the Universe for keeping me well and healthy and being cured of canSer. I know it’s a big ask but I am hoping the Universe will hear me.

Back to researching and working. I gratefully received some beauty products from Jennifer Young who has a beauty range for healthy people and a range specifically for cancer survivors. Those that are going through chemo and beyond. Our skin suffer, become s sensitive and hair is lost. Sometimes things return to normal but sometimes the sensitivity continues. It is imperative to people like us to look and feel good during such a low time.

The skin care products that Jennifer kindly sent me were a full facial range. I have been using them since Sunday and I already have noticed how soft my skin feels. The smell is divine and I would almost consider never changing back to anything else! I really like both serums for the eyes and face, as well as the cleansing balm. It's very unusual that a balm is used for cleansing. I love it.

If you would like to check them out go to; www.beautydespitecancer.co.uk

Not only is the website full of great products which you really must have, (if you are anything like me- a product junkie – then you ‘have' to have everything!) it is has great information shared by other canSer survivors and a blog. There is a team of people sharing their knowledge and expertise on beauty, well-being and fashion as well as writers from the fields of business, finance and insurance.

Wigs and hairpieces are also sold on the site. Plus there is a 0800 number that you can call; Appearance Advice and Enquiries telephone: 0800 999 8518

I would highly recommend you spend some time reading and if you don’t have canSer then there is a section where you can buy gifts! Hint hint!

Jennifer Young also has another range of products for 'healthy' people. They are great as you can customise your skin care for your specific needs. I think it is a genius idea and the products look great! Here is more about Jennifer Young; http://www.jenniferyoung.co.uk/why-jennifer-young

I am so interested in these products that I am considering purchasing both ranges to use with my beauty clients. It would be lovely to offer those whom need special treatment something that is made with them in mind.

I will be trying out the fake tan soon too. I’ll let you know how that goes once I’ve tried it. I have just seen today that a mascara has been launched too. How weird life is.. I was just thinking I needed a new mascara.

The Universe spoke to me.

Innocent

                    

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Triple Negative

So there's good news and there's not so good news....

by Claire11. February 2014 18:15

 

There’s good news and there’s not so good news. I can’t say there is bad news because that just isn’t right.

Today has been challenging. I left home at 8.30am because I wanted to be ultra sure I got to the hospital on time and could get my bloods done before my appointment for scan results. I cannot believe it took me an hour and half to go a normal twenty minute journey. That was fine as I got there just in time for my appointment. But then had to wait over an hour to be seen. And sadly not by Prof Harris as he was away. (We were both so looking forward to seeing the Profs ‘happy’ tie Laughing )I knew as soon as they told me that I was to be seen by another senior oncologist that the news was not going to be great.

To be honest that was the worst of it. Waiting. The knowing. The dread. The look on both of our faces. That’s the worst feeling. Once inside the room and sitting with the oncologist then anticipation is over.

The news wasn’t what I expected. I had a really good feeling that this time was going to be ‘my’ time. That something brilliant had happened. Everything inside me tells me I am well. I feel not only physically brilliant but mentally and emotionally. The scan results as usual are confusing and do not correlate to the previous scan. It’s like trying to decipher code. But on looking at the actual scans on screen I can see some changes. But not much.

So that’s a positive. The long and short of it is... I have had, what’s known, as disease progression in the tumours in my lungs. They appear to have increased by about 20% in the right lung and lymph node. The left lung doesn’t look like there has been much activity but they ‘assume’ that they too have increased. (Would it be so hard for a bloody radiologist just put details of everything they see? And can they please not confuse upper and lower lobes?!) We are still talking small sizes no bigger than 2.3cm. But that is still an increase and I have to say I was hugely disappointed.

BUT then I was hugely relieved.

I have not had any disease spread to any other organ or bones. Phew! That makes me so happy! So I am still containing it but the onc reckons that the chemo, Vinorelbine is not doing anything. There is an argument there that it could be doing something and that in fact the tumours grew a lot in the time I wasn’t taking any chemo and have gotten small since but the onc's gut feeling is that it isn’t working.

So onwards to the next treatment option. It has been suggested I start Eribulin. Nicky, the oncologist was excited by Eribulin and has seen good success and it could help me survive a lot longer. It sounds like she has to request funding for it and is only given after a patient is on their third line of chemo. The down side is that I would lose my hair again and probably feel rotten and it’s given intravenously.  But that’s what they said about the last year of chemo. I don’t relish being bald again but hey ho... It’s just hair and men lose theirs all the time! The other option is Carboplatin and Gemcetibine. This we have heard of. And it has been quite successful for many.

Pete and I sat there so overwhelmed with what to do next. It’s so hard making decisions when you simply do not feel ill and when every cell in my body is saying, ‘don’t have any more treatment’. But the other part of me is saying, ‘give me it all! I don’t want to get any worse’. It is so hard making decisions about life and death.  We decided to let the onc know tomorrow once we have thought about it but we think we have already made a decision.  I am going to finish this cycle of chemo I am already on. Then I have a few weeks till I go to Switzerland to have GcMAF. In between now and then we hope to hop to Germany and have some more DC therapy. I have contacted Doc Nesselhut and await his response.

During our appointment the onc did mention that maybe, just maybe I could have the larger tumours ablated. We have discussed this with Prof Dalgliesh before but he hasn’t got back to me. So we agreed for her to try and get the go ahead through the NHS. Nicky did say not to get our hopes up. Why would I? It is the NHS after all. The reason for not doing it would be that I have other lungs mets and that it would be pointless. I am sure the radiographer would feel differently if it were his life or someone he loves.  Any who....

I had a little wobble, a few tears afterwards, but then had a big Bear cuddle and came home. Pete went back to work and life goes on. I feel remarkably well. I am bit confused as to what I am doing differently that is causing the canSer to grow. I feel maybe that the treatment in Germany needs to be intensified and more often. There are other things I could be doing but then there is so much out there to choose. It’s so hard to know what to do next and I wish someone would just tell me! But what works for one may not for another.

All I know is that nothing is different for knowing this information. Really not a great deal has changed. When the tumours were that large before I had pericardial effusion. There is no mention of that. So the lymph nodes are currently working OK.

So not all bad. See the positive in every situation. We also got to meet a lovely TNBC supporter whilst waiting. A canSer patient who looked really well and came and talked to us. It’s so great knowing that people follow us and our story and that they feel it helps.

I wish I had the best news for everyone and could tell them that there is one particular fail safe treatment. But I can’t. Not yet at least. We are working on it!

So what’s next? I have to consider other treatments such as intravenous vitamin C, chemo-perfusion, mistletoe, RGCC testing, Halean 951 and more. Not sure where to start. Best get researching some more....

                         

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Triple Negative

Completely immersed in living....

by Claire10. February 2014 15:02

 

Well... I’m back! It’s been more than a week since I have blogged and I can say I have missed it but I also didn’t have time to miss it. (Does that make sense?) I have been completely absorbed in Pete, my friends and the awesomeness of skiing and the views. Every single day I counted my blessings, couldn’t believe my luck with everything I was witnessing and experiencing and generally feeling very chuffed with myself.  That’s what holidays are for right? Completely immersing oneself into their surroundings and being present. That’s what I was... completely present. No worrying about home, work, kitty or anything.

But... as usual I m always so happy to be home. Maybe for the first time I have a little amount of holiday blues. However I couldn’t have skied any more. My poor little legs couldn’t hack it!

Getting home was an ‘interesting’ experience to say the least. What with all the storms and high winds we have been having the takeoff and landing tested my faith. I closed my eyes and prayed to whoever would listen that we would make it home in one piece. I kindly ask that I do not experience that again please?!

Now I am home I have a lot to catch up on. Washing firstly... there is a mountain of it and coursework. I missed a week of the health coaching course. I am ploughing through it today though in-between housework and clients.

Yesterday Pete and I spent a lot of the day eating healthy food and watching the Winter Olympics. We lacked a lot of foods that I love abroad, mainly as I simply wanted to indulge. (The cold weather makes me want to eats carbs!) The first Olympic medal for Great Britain was achieved yesterday and I felt so happy and overwhelmed. I love seeing people achieve great things.

Now we are home there is much to be done and much to look forward to. I try to live in the moment and not look too far forward but it does keep me focussed.

I am happy to have returned to my rituals and immediately did a coffee enema yesterday. I have to say whilst away I took the chemo drugs as usual. I felt very anxious about it but thankfully I really didn’t experience any side effects.

The only down side to the trip away was the lack of sleep. I am convinced it is a combination of food, drink and the mountain energy. Of course being back in my bed for two nights already, has meant I am feeling nicely rested.

So what’s next? There has been plenty of alerts on triple negative research all of which I post on facebook as and when it arrives. And tomorrow the scan results are in. I am trying not to think about it as I naturally get myself worked up and fear the worst. But I am trying to take my own advice and not think about what may not be and just keep thinking about how I feel today. I can’t change it I just have to deal with it. It is a pretty cruel situation to be in every 3 months though. The tension mounts and I feel like exhaling deeply over and over. Poor old’ Pete has to go through it too and it would be just amazing if all this hard work from both of us could pay off.  I feel great so if that’s anything to go by then we should be fine.

Till tomorrow... X

I'll leave you with a little picture of me on top of the world.

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Today is the day....

by Claire31. January 2014 11:47

 

Today is the day... For my next CT scan. I have been remarkably calm probably because I have been so busy I haven’t had time to worry. But now I am about to go out for a few hours I have to wait till 4pm on a Friday afternoon to have the said scan. I have to admit I am no a little jittery. I don’t really know why as I won’t be getting the results until the 11th Feb! This is only due to the fact I am away for a full week. So really there is nothing to be worried about at all today. It’s not as if my life changes today but I guess I know that as a result of today’s scan my life is going to change. Well if I let it. I am ever hopeful and really have a good feeling but I can’t help that niggling feeling in the pit of my tummy that throws doubt up in the air.

I have had the pleasure of sharing info with my TNBC friend and it feels good to know we have each other’s back. That’s what is great about these kinds of networks. But this time it feels like I really have a confidante. We are so similar and our drive to survive is the same. Lots of new information is feeding forth between us and new doctors and trial names are filtering through. It’s great having a new set of eyes on the subject. It’s amazing what one person can find that I never ever heard of!

Maybe I am also a little floopy as we are leaving tomorrow. I always get a bit nervous. I am anxious of making it to the airport on time, will the flight leave ok or will the weather have an adverse effect on the travelling? Will our transfer be ok, will the hotel be alright? It’s so silly but I will never be calm about travel. I guess it’s because I have no control over it.

I am going for reflexology soon. I haven’t had one in nearly two months so I am really looking forward to it but I am anxious that being Friday afternoon will the traffic from there to the hospital be awful and hold me up... Again there is no point anticipating what I cannot control.  I am thinking of every possible route to get me there with very little trouble. Maybe doing a coffee enema this morning hasn’t helped me feel calm. I feel jittery. Initially I felt vibrant dancing around the kitchen but now I am simply just strung out! Argh! Ha ha...

Chill Winston. ....

Right I best have a calming cuppa and then get on my way to an eventful afternoon. Bye!

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Triple Negative

Bear Rock....

by Claire30. January 2014 17:14

 

It seems things go wrong just when we are about to go away. This was the case at 4am this morning when we could hear a burst pipe or constant running tap. On investigation we couldn’t find a thing but the worry of the house flooding whilst we are away next week was enough for both of us to get up and start the day. The positive in it was that I got everything done very early and managed to exercise for longer as I felt I had more time. The issue is getting sorted and I feel happy that we won’t come home to a soggy house. Well not at least from a burst pipe. I’m not too sure about the weather though. Everything is damp and moist. (Moist is a horrible word eh?!)

Today I have been getting things ready for the off and have also been working all day with clients. I like to squeeze as much out of my days when I am working. It makes it worthwhile. It’s chemo day one cycle three today. I have reduced the anti sickness down further especially since finding out that dexamethasone affects insulin levels. So far I feel great and haven’t had any signs of an upset stomach at all. Yay!

Yesterday I had the pleasure of chatting to another TNBC survivor. Going back to what I said the other day about synchronicity, well this happened to be one of those moments. I ‘met’ a lovely lady whose story could have been mine. Same timings and exact same way that the canSer spread, to how we both felt in the beginning and the lack of changes we made then, to now. Of course talking to people in the same shoes as I can be humbling and I completely feel how they feel when they are going through mixed emotions and feeling vulnerable and the crazy thoughts that go through your mind such as throwing all your clothes away because you won’t  need them for much longer and so on.

But what it does make me realise is that we are all such normal (and may I say it about myself) ‘nice’ girls. We don’t want much out of life just to be happy. It’s not too much to ask is it?

It gets me every time to think where is the answer to this crazy disease? How can there be so many resources and experts looking for the answer for so many years but to no avail?

I still think the answer is probably staring right at us. Why haven’t we got any great inventors or scientists who can make that great discovery? People deserve to have a fighting chance. And this isn’t just for canSer but also for HIV and AIDS and other debilitating diseases such as multiple sclerosis. Life seems unfair sometimes... But then I think how lucky I am, then I am thankful again.

On chatting at length yesterday it was clear that my new friend has also bagged herself a 'Bear'. My best friend bought my husband a Christmas present that was only delivered yesterday. It was a painting by an East London Artist, a girl from the area of my birth called ‘Bear Rock’. The picture portrayed a big bear head in choppy seas with a girl with a cat’s head sat on him. I couldn’t believe at how uncanny the painting was at depicting our life. Utterly awesome. But that makes me think that there must be many couples in such the same situation (and of course completely lucky to have themselves a Bear!)

One thing that cropped up during our conversation is how she feels bad and sorry that her husband has to go through all of this. I completely understand and I go through phases of feeling the same. But I think I’d go to the end of the Earth for my Bear, so why feel sorry or bad. We are dealt the cards it what you do with them that really matters. Love conquers all!!

I still have three clients left to do today then I really want to eat and go to bed. My bed has never looked so good! Ha ha! So Ta-ra! X

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Triple Negative

Fit to Fly?

by Claire28. January 2014 17:35

Phew what an early start I had today. As you’ve guessed it sleep is highly important to me. I can’t get enough. I love being curled up all warm and cosy therefore getting up at 6am hurts me. It was only me that wanted to get up at 6am. I had a Skype meeting booked for 10am and in order not to miss my rituals then I had to get up early. I also know that I will feel great all day in the knowledge that I made the effort and didn’t miss any of the all important rituals that make me feel great.

As mentioned I had a Skype meeting with a fellow student as we are practising doing health consultations with each other before we are let loose on the public! (I want to do one of those 'Wa ha ha' laughs... you know the ones that sound all scary? - I’m not sure why?!)Foot in mouth

It was lovely meeting a fellow student. We have a lot in common. To be honest I am finding that the majority of the people on the health coaching course are like minded and therefore have similar needs and goals. It’s quite liberating and aspiring to be part of that community.

Star Student!
As part of the course we have to do a test every quarter. I have just successfully passed my first one! Yay. 28/30.. That’ll do nicely.

After the Skype meeting I got on my way for my pranic healing appointment. As usual it was very relaxing and I feel spurred on by Les, the healer. He says that everything seems very good still and encouraged me by saying that I do a lot of cleansing and detoxing, including my diet, enemas, salt baths, and meditation and so on.  He says things like, ‘you won’t be on chemo for much longer’ and so on. Those sorts of comments ring in my ears. I feel that’s a very confident comment to make. However I will happily carry that with me, being a canSer survivor you have to keep positive and believe, and that is what I base my life on at the moment. I have never felt so ‘normal’. I feel inspired and excited by the future and can’t wait to learn more and help others.

Straight after my treatment I drove to the hospital and had my bloods taken in preparation for chemo on Thursday. As I am going to be away next week I will be taking chemo with me. It’s not ideal but I think I can smash it! I feel awesome. I have no doubt I can deal with it.  

GcMAF
I am getting a little further forward with booking to go Switzerland for treatment for GcMAF. They have finally confirmed dates but I need to get a ‘fit to fly’ certificate as apparently some patients have lied about how long they have to live and if they were to die in the clinic then it would be shut down. Understandably really! I guess there will always be people who try to tell fibs when their life is at risk. I guess I will be contacting my doctor tomorrow to sort that out. And no doubt they will charge me for it! The NHS has to make money somehow.

So my week is flying by, I am feeling great and am chomping at the bit for things to happen. Of course I have a CT scan looming this Friday. I remain positive and upbeat. No point in worrying about what might not happen. Still if how I am feeling and looking is anything to go by the results should be good. If it’s not then... Nah.. No point even thinking or discussing it. Till tomorrow when I will have more things to be happy and grateful for.

 

Ciao!

                                                

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Triple Negative

Burns Night fiascos and a new week ahead...

by Claire27. January 2014 18:00

 

The end to last week was highly memorable. We had friends over to celebrate Burns' Night. I did lots of preparation in the afternoon and then Pete made magic by creating a perfect meal and lots of fun entertainment. Everyone made an effort by dressing up and we all had a brilliant time. Maybe too much fun on knowing that everyone felt pretty delicate the next morning!

                          

The weekend then followed on by being a very chilled out one with our good friend staying with us. We ate healthily and spent quality time just being together. Even though it wasn’t packed full of activities I still didn’t want it to end. I never do.

I love being with Pete so much it always feels a bit sad at the end of the weekend. But I look forward to doing my own rituals and getting back to being really focussed. Mondays are the hardest I think and with this increasingly changeable weather it’s hard for feel bright when it’s so dank outside.

Nevertheless I have still been having fluffy feelings of how much I love my life and I can’t wait cuddle to Pete again.

 I have today been practising taking consultations for the health coaching course I am on and as well as that studying for a test that we have this week. On following lots of other students online I have been introduced to many things. One thing I noticed today was a brand of products that are made in the UK and are completely customisable for your own individual needs and of course are completely organic and nasty free. I want to extend my own passion for health and nature into my business and today I found what could be the perfect range of products for me. I have contacted them and await some samples to try out. Once I know what they are like I will reveal all to you!

I still haven't booked to go to Switzerland for GcMAf treatment. It seems I am still waiting to see what dates the clinic is available in March. I am not worrying too much but just know it could all be a bit of a rush when I do finally know what's going on inside of me. I have everything crossed..

For ladies that need some motivation here’s a little lift for you....

                              

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What should triple negative canSer survivors eat?

by Claire24. January 2014 13:49

 

This week is flying by and it’s Ffffriday! I have got that Friday feeling and the weekend is almost upon us. Today I had a very early start. In order to get everything done before my hyperbaric oxygen appointment I needed to drag myself out of my lovely bed at 6.30am! Well in fact Pete had to drag me out. He pulled back the duvet... the cruel Bear! But I have to admit I feel great for having got up done meditation, 10 minutes of yoga, 30 minutes of  hard core extreme rebounding ( I sweat a lot, it’s not a pretty sight!) then heat and air for 30 minutes, jumped in the shower after body brushing and saying affirmations then juiced and had supplements.

I was as ever reluctant to go to the hyperbaric appointment, however they are such lovely people there and I kept myself calm and thought an hour and twenty minutes will fly by... (Please!?)

It did until about 15 minutes to the end and then everyone was jittery and looking at their watches. Thankfully the mask I used today was comfortable and I didn’t have any ‘moments’ whilst in there. It’s like anything, the more you do it the easier it gets.

I have since got home, done a coffee enema and had company. That sounds weird right? My kitty decided she would curl up the floor with me whilst I lay there relaxing for 15 minutes. I’ve done a few clients and now I am free for the afternoon preparing for our Burns Night tonight. A night of fun, frolics, tartan and haggis! (Mine’s vegetarian)

 

More deliveries

I have today received an order of Flor essence in the post. I was urged to buy this after reading many positive things about it. Flor essence is a great brand of Essiac tea. Essiac tea is a well known tea blend of Burdock root, sheep sorrel herb, slippery elm bark, watercress herb, Turkish rhubarb root, kelp, blessed thistle herb, and red clover blossom. It has been featured for many decades as a canSer cure in the early stages of canSer but the reason I bought it is that it is a great liver detoxifier and immune system booster. It can aid people whilst on chemotherapy and also be of comfort to those who are in much later stages of canSer. Laboratory experiments show that the blend possesses such properties such as; antioxidant, immunostimulant, and anti-inflammatory effects.

When the Essiac mixture was originally formulated by a Canadian Ojibwa healer an unknown number of years ago, it was intended to purify the body and maintain balance between body and spirit. In accordance with this, Essiac is frequently used for its antioxidant properties.

Because of it immune strengthening effects, Essiac is commonly used for treating pain and swelling associated with generalized inflammation (such as that associated with arthritis and respiratory tract infections), HIV/AIDS, other infections, and cancer.

I haven’t tried it yet but will let you know when I do.

                         

What should triple negative canSer survivors eat?

I received an email from a blog

ging friend with a link to a website regarding food for breast cancer. Click the link below and it gives full information on what foods should be avoided and what foods that would benefit for those with triple negative breast canSer. The website Food for Breast Cancer is written by Sarah Charles, a breast cancer survivor with a mathematics degree from UCLA and a graduate degree from Harvard.  The information provided on her site is supported with a lot of scientific research and links to evidence. I have found it really interesting and quite exciting.

Here is the link:
http://foodforbreastcancer.com/articles/what-should-triple-negative-breast-cancer-patients-and-survivors-eat%3f

Right enough chit chat I have neeps and tatties to peel and chop, haggis to prepare and I guess I ought to try and practise my Scottish accent. I bet everyone will think I am from Wales not Scotland! Ha ha! Pictures to follow. Laughing

Have a great weekend all!

Light and Love.

C

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Triple Negative

Ketogenic diet... it's not that simple..

by Claire22. January 2014 18:19

 Today I had a Skype meeting with the nutritionist I mentioned. She specialises in ketogenic diets and helping cancer patients. What makes her so good is that she has a melanoma in her eye. She is actively doing the diet so it is tried and tested. She gave me plenty of information and I look forward to receiving more details by email. She said that the ketogenic diet is generally 80% fats from things such as coconut oil, and avocado then a small percentage of protein. Obviously I cannot have much protein as this turns to glucose and then leafy green vegetables. I would be limited with grains and seeds but I could have a small amount of lentils and low carb noodles.  She was very specific on grams of each thing according to my weight. So there is a scientific background to this. She specified eating my whole day’s food within eight hours and fasting for the rest. She also said that I would need to integrate into this diet slowly so as not to overload the liver too much. She mentioned the fact I was on metformin and said that it was a real benefit as this assists with limiting insulin. I thought to myself, good old Nesselhut thanks for introducing me to this!

Overall I think this is going to be challenge but I am willing to give it a go. I did ask if I was eating meat what she would recommend. She suggested lamb as good option as it digests well. I mentioned travelling to Germany a lot and she said how good bratwursts can be. If they are of good quality they contain no nitrates and are not over processed. This will cheer Pete up. And me actually. I love good sausage when in Germany.

I picked Patricia’s brains about supplements and she suggested taking digestive enzymes with meals to assist me. I told her I had read a lot about omega 3’s and she advised that whilst on chemo to avoid taking omega threes other than the oily fish that I eat. There are studies apparently that show omega threes can interfere with chemotherapy. This surprises me so much. I am always a bit dubious of those findings.

She supported me with having no dairy especially with having breast cancer but suggested goats butter as a good fat to take. She did also mention a good drink, well, concoction I would call it, to incorporate fats into my diet. It involves coffee but knowing I don’t drink caffeine she suggested using chaga mushroom powder. It apparently makes thick creamy drink that gives lots of mental clarity. I will approach this with caution.

Luckily for me she will be launching an eBook hopefully next week with tried and tested meal plans and some of which are vegan. I am keen to get hold of that! It’s like any new regime. It’s a lot to take in and try to understand all the rules.

I don’t love the idea of this diet. I am all for a simple life but in the process of wanting to keep this disease on its toes then needs must. Pete said the fact that it is reacting in an extreme manner inside me warrants an extreme response.

After such a positive meeting I left for a pranic healing session. After the fall out of missing my appointment last week it was good to finally see Les and have a lovely treatment. I genuinely feel great at the moment and despite chemo I feel that coffee enemas are really helping and my mental state is grounded and strong. Les feels that my energy is good and there aren’t really any weak points on me, not even in my lungs. He thinks the scan could be really positive. I am thinking as positively as I can and I can’t remember feeling as cancer free as I currently do. I feel quite free. Long may it continue.

 

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