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Four days left...

by Claire11. September 2014 10:21

I've had a lovely morning so far... I've done my morning rituals best I can whilst being away from home. Coffee enema, nebuliser, taken all meds and supps and more.

I am feeling pretty good. I am still avoiding green juices however the last few days I had an epiphany. In the place of juice I had been having bicarbonate of soda, lemon and olive oil water. Then one evening in St Tropez I felt overcome with nausea. Not very classy running to the toilets and throwing up! 

Then I realised I bought a bottle of apple cider vinegar with me and had barely used it. Knowing the amazing benefits of Apple cider vinegar I have been having that with my meds and supps instead. So far so good. I don't feel nauseas and I don't have stomach upset... Maybe that's what I needed. Apple cider vinegar is very alkalising and calming on the digestion.

I have continued however to have migraines. Now the neurotic part of me thinks, Oh God, could this be something more sinister. Then I think of all the triggers that could be setting them off and the list is extensive, caffeine, red wine, heat, sunshine, eye tiredness, stiff neck, lack of sleep, dairy products and more.. I can tick off all of those as possible factors to my head aches. So telling the neurotic me to back down then once I get home and realign my life then we shall see. 

I made another batch of GcMAF yoghurt yesterday. Because of the heat here it's process is complete much sooner than at home. This morning it looked like set yoghurt and smelt amazing. I am really loving this stuff. It's in the fridge now and I will test it later with some berries. 

Yesterday Pete and I decided to try something I had always wanted to do.. Paddle boarding. I was really nervous.. Lets face it I'm nervous about anything new. I wasn't given any tips or assistance by the French guy renting out the boards and was pushed on my knees off into the sea.. Argh! It wasn't great because he said be careful not to fall onto the rocks below! With that fact and the very wavy sea I was a bag of nerves. I whined and moaned as I tried to control the paddle board with my oar. Being panicky I failed to listen to Pete's instructions and whilst drifting into a moored boat decided I would go back to shore. Poor old Pete was trying to help but I just didn't get it. I watched a while from the shore then Pete came and got me. I had another go and this time I actually got up onto my feet and... Paddle boarded! Yay! However I wouldn't say I was entirely happy. I really wanted to be able to jump off and on the board but because of the rocks was petrified.... Not ideal. I need a lake with no waves, tides or current. I need a shallow pool to jump off into....Where will I find that? I'm pleased I tried but now really want to master it.

 

This morning I had a message from a friend who has asked me to speak on a night her friend is hosting. She will be launching a calendar 'inspirational women' and wondered if I would like to say a few words. I will be announced as one of the inspiration speakers.. The calendar has been promoted on the Lorraine Kelly TV programme and Anne Diamond's radio show. Gulp..... I know I should but I am such a wreck at speaking in front of anyone! I have been assured that it isn't a big affair and my friend said I have a story to share.....

 

Thoughts have started to go back to home. I am already thinking about packing and the journey ahead of us. I have to say I am going to miss this place...it has been the longest three weeks of my life! It feels like so much has happened. When mum left on Tuesday it felt so quiet here. She was such a great support. I know I couldn't have driven that beast of a car without her. She helped me clean, do washing and organise lots. (Yes I did cleaning and washing because I had friends arriving- a girl has to have standards you know!) it's the first time I have spent two weeks away with her. It was lovely. 

 

 I am so pleased we invited many of our friends and family to stay. It would've been too big with just us here. It's been so lovely having such happiness, laughter and joy surrounding us. There have been times when I felt frustrated and a bit lost but then spending all your time with people can be suffocating.. But how quickly that changes when they are gone. 

 

So what now? I am going to really enjoy the next four days with my man. Next week is all planned and I aim to transition smoothly into my rituals back home. I hope to feel back to normal soon. I have a life coaching session booked for me to get focused and find my mojo again and in three weeks I will be a fully qualified health coach. Boy that year has flown by! My main aim is that I want to help other people have a better life... 

I am looking forward to the autumn and the rest of the year ahead.

How is it looking for you?

Xx

 

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Triple Negative

The Bear is back...

by Claire7. September 2014 10:54

Another five days have passed. Time flies when you are having fun! The week flew by actually and I have had more friends arrive and my step son leave. And at last the Bear is back! It's been an interesting week. I am not the most confident person on the roads abroad and this last week I have been forced to drive, if I actually wanted to leave the villa. I would have been fine driving my little car that is parked outside my house in England but I have been driving Petes car. Parking has been an experience. I was happy for Pete to return yesterday to take over the driving role!

Our friends from Ireland are with us now for a few days. It's so funny seeing them here. Obviously we don't get to see them much but taking every opportunity to catch up is brilliant. We are so relaxed, chatting, laughing and loving. Their daughter Marsha is gorgeous and brings us so much happiness. I love her passion for shopping.... A true girly girl!

 

In the last few days I have abandoned having green juice. I am taking my meds and supps with lemon, bicarbonate of soda and olive oil water. This is much better and I am no longer nauseas. It is also funny how my diet really has changed. I am indulging in everything and anything I want. I am not being lazy. I am not feeling guilty. I am simply going with the flow. I do think it has having a slight adverse effect on my body such as diarrhoea and headaches but I love checking out the menu each evening and thinking, pasta... Yes why not. My friend Patricia said maybe my body is healing and letting it have what it craves is a good thing. I have spent so much time in the past few years doing the 'right' thing. I don't think it will hurt doing what I feel for a while. 

I am now going into my, wait for it, third week here in the South of France! I know! Three weeks! I may not be sleeping because of the heat, I may have mosquito bites itching me and I may be putting on some weight... But I feel so free. I have never stayed somewhere like this. I sometimes do my rituals such as enema, meditation and yoga and sometimes I don't. Isn't that great? Doing what ever I feel like doing.

What I do religiously is sit in the sun... I love the sun. In fact I have changed colour somewhat... I do love a tan. So I guess my vitamin d levels are quite high. It's ok though.. I am preparing for the dark winter ahead. 

I do have the odd thought about home. I am still planning treatment for my return. I text Carol the nurse from St George's as I still haven't had a reply about the next round of il2 injections. Carol, bless her, replied from her last day on holiday and said that if I didn't hear from her on Thursday to contact her. I've text her again. I still have time to organise. 

 

I still have the cough, although annoying, Pete says he doesn't think it is getting any worse. 

 

When Pete went home he picked up the recent copy of Prima magazine. Why? Because I am in it! I've attached a few pictures with the text. It's so funny seeing myself in a magazine.. It was also very nice the other day to be mentioned in an interview with one of the lady's from Nicola Jane mastectomy lingerie. My fifteen minutes of fame! Haha!

 

                                            

So what is happening today? Soulful Sunday.. Fresh foods, plenty of sunning myself and plenty of time to be grateful. The main theme of the day... Love.

Tunes are playing by the pool... I am  having lots of cuddles with my Bear (well I need to catch up on the last weeks worth that I missed!) and then tonight we are off to St Tropez.... Darhlink!

 

Hope you are all feeling the love today.. Happy Sunday!

Xx

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What to report from my floating lilo?

by Claire2. September 2014 10:39

It feel like it has been ages since I last blogged. I'm not ignoring everyone I am just simply having too much fun living and relaxing and being away from home and out of routine. I'm into my second week away and it already feels like I have been here an eternity. Friends have left and more friends and family have joined me. 

Sadly Pete has gone home for five days. He has to work. I am so lucky to be able to be on holiday but it feels so weird that Pete is not here.

What is there to report? 

I have been battling with my meds and supplements still. But think I am conquering my nausea by eating something with them. I have had a few days break from green juice. 

Sleep is still really hard. The other night it was very very windy and it felt and sounded like the house was going to fall down. The heat is crazy here but I am soooo not complaining. It is now September and the sun is still shining and the heat is immense. 

I wish I could sleep better but at least I do not have to anything much during the day. To be honest I could sleep all day if I wanted!

I am not writing this to make everyone jealous. This is a once in a life time for me. I have never stayed in one place for this long and it feels great. I will want to go home though. Just not yet. 

I would like to feel healthier. I don't like having stomach aches, head aches, nausea and more. A lot of how I feel is down to anxiety too I think. What have I got to. BE anxious about? Nothing really but old habits die hard. 

 

Whilst here I am still doing my weekly module of the health coaching course. Funnily enough it has been focussing on the importance of sleep. Oh sleep... How I miss you. I miss cuddles with my Bear and I am counting down the days till he returns.

I have been getting really brave driving here and yesterday had the wing mirror replaced. For a short moment there it looked like it wasn't going to happen but thankfully the lovely French mechanic sorted it for me. Phew. So now the car is as good as new but our credit card balance has been hit hard. Boo.

Today I am going to try and eat well, stay well hydrated and rest. I have been doing lengths of our little pool here. Although not as many as my friend. She did 140 lengths this morning!

 

Last night I had copies of letters emailed to me by Pete. They were letters from my oncologists sending update letters to my GP. It was quite nice to read that they think things could be going in the right direction but that my next scan in October will be one to confirm that.

Prof Harris also wrote to say that he couldn't give me mebendazole but gives his consent for me to proceed and have that treatment if I can get it. He also said he doesn't believe a PET scan will be any better than a CT scan but if that is what Professor Dalgliesh would like then he will happily organise that for me.

It seems that the oncologists are all very agreeable at the moment! I like it!

 

Lying here getting browner by the day ( I do love a tan) has given me time to think about the forthcoming months. There is a lot to look forward to. Social events, trips away, treatments and more. I am even going to a spa at a London hotel with my old school friend when I get back. Not that I need pampering.. But any excuse for a good old catch up and gossip. 

I have emailed Professor Vogl informing him of my current status and asked his advice. He is also so quick to reply and his emails do make me laugh. They are so short but to the point. He is very keen to get me to go there and have a scan and then if I want and need have TACE immediately. 

I am not sure about this as I am in Duderstadt the week after I return from France. I may try to tie in after my scan around October time if we can make time for it. I'm obviously hoping I don't need to go there but I have to say I am quite intrigued about meeting the man himself. 

 

So my iPad just overheated whilst I typed this outside. I have now taken my iPad out of the fridge to finish off!

 

I feel so grateful and so very lucky to have this life in every way. I am so very grateful that despite my annoying niggles of nausea, diarrhoea etc, that I actually do not have any canSer symptoms. I look up to the sky from the lilo I am floating on at the deep blue sky and think to myself, don't ever let this end. This feeling of calm, happiness and serenity. Give me back my Bear and then I will be complete.

 

Xx

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Triple Negative

A tense journey but we can finally relax....

by Claire27. August 2014 08:53

It's been a busy few days for Bear and I. Friday we took our friends at 5am and drove to the Eurotunnel. We had a little euro tour planned again but not for treatment this time. For the next 3 weeks I am on vacation. I know 3 weeks right?! How lucky am I?

As I couldn't fly due to having had ablation less than two months ago we decided to drive to the south of France stopping en route. France is so beautiful and the changes of scenery are breathtaking.

Sadly our journey down here was more than we bargained for.

I stupidly forgot our passports and left them in the first hotel we stayed in. We stopped in a place called Beaune. It was so traditional and beautiful. We got up nice and early to get to our final destination in plenty of time to be able to settle in then I got a call to say I had left them behind! Doh! That added on a couple of hours to our five hour journey. Oops.... Then the whole of France must have decided to descend onto the motorway we were on. The long and short of it was that throughout the journey the estimated rival time extended to 11 hours and to top it off a large holiday caravan type vehicle decided to drive at us. Yes at us, taking our whole wing mirror off! It made such a loud noise we all thought something must have gone through our windscreen or taken the side of the car off!

Driving on the opposite side of the road is hard enough in a foreign country but driving without the wing mirror you so depend on is well, driving with a death wish! But we had no other choice. We have found a garage and in our broken French spoke to the mechanic who has sourced the mirror but we have to wait five days before it can be fitted. And the cost, well, it's sickening!

We have tried to not get too upset by this and have ploughed on at having fun. 

The weather is changeable but lovely and I have been doing what I love the most-sunbathing.

It has been quite a topsy turvy time for my bear and I. Having people with us means we don't cuddle quite as much and the heat at night has meant we sleep at a distance. We miss each other and tempers have been flaring. I have been told that I am more agressive than normal and even though I don't think I have I can only put it down to feeling under par.

I have continued to struggle with drinking green juice and taking my meds and supplements without the want to vomit. I have had stomach aches and upset tummies. Today though I feel much better. Maybe it's because I am calmer and happier or maybe I have just got over myself and letting my mind dominate.

Where we are staying is very relaxing and yesterday I got to meditate and do a spot of yoga, I hope to get into a routine whilst here. Pete has to return to work so I will be here with my mum and some friends. I have already been losing sleep about driving here! But I am sure I will get myself sorted out eventually. 

Yesterday we spent some time lazing by the pool and I got to read some really interesting documents that kind followers have been sending me.

I am hearing and reading a lot about mebendazole still.  I think I will need to book to go to the clinic in London that uses it. 

Mebendazole disrupts the glycolic pathway while at the same time it can cause the cell membranes of mitochondria to rupture and cytochrome C, which leads to apoptosis.

I read though that not only that but other things like NSAIDS such as Ibuprofen (not sure it is the type you can buy in the chemist) are very helpful for treating cancer.

NSAID's formulated in lipids which would be preferentially taken up by cancer cells, due to elevated levels of LDL receptors on cancer cells. Such a form of ibuprofen exists. The dose would be 400mg three times a day.

Ibuprofen binds COX1 and 2 and PPAR Gamma receptors in cells. Activation of these receptors in cancers cells particularly invokes apoptosis of those cells. 

In addition the benefit of ibuprofen would be to treat inflammation induced by cancer, the ascites that sometimes results and the attends pain.

This seems quite exciting because these things should be easily added to my protocol if they are effective and if they are useful are relatively cheap to take.

I am definitely going to pursue this when I get back and in the mean time book an appointment.

My cough has been pretty bad since I have been away but today, touch wood, it seems to be much better. I hope it is what Pete says, that it is only the lymph nodes effected by the dying tumours. I don't feel ill other than that and the fact it comes and goes is a good thing. I am hoping by the end of this break I will be as good as new.

I have continued to take scorpion venom along with reishi and more. The boot of our car was full of everything I need to do on a daily basis.. Lucky we drove really.

So today I am going to rest by the pool, listen to some music and maybe take a stroll along the beach later. Then I think I will do the same the next day, then the next and well, you see a pattern forming here. 

Au revoir!

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Triple Negative

Side effects again dominating....

by Claire21. August 2014 17:48

 

Last night I had the second il2 injection of round five. I tell you, the side effects get worse. By 8pm I had full shivers and felt rubbish. I gobbled up paracetamol again but they didn’t have the same soothing effect. I went to bed in a pickle.

Thankfully though I did kind of sleep. I slept on my back all night so I know I didn’t properly sleep but at least I felt rested this morning.

The cat was very happy though. She snuck in before we shut our bedroom door and she slept on or right up close to me all night. At one point I heard her drinking from my glass of water on my bed side table! Lucky I didn’t need any then! It must have been a cold night, that’s all I can say, because the temperature I was kicking out must have been up there. I got out of bed this morning very red faced and felt urgh...

It took me hours to sort myself out this morning. I have also been struggling taking my supplements and medications. I am not sure if it is a mental block but I really am off green juice and supps combined. It’s so weird how things change. Only a few weeks ago I really felt that taking my supplements whilst drinking my juice was a great combination. I felt energised and at ease. Now I regurgitate every time I try to take them. Even my reishi powder and oil made me vomit. It’s so unlike me. Thinking about it now is making me get all watery in my mouth. That’s a bit of a pain as its time to have my evening round of meds and juice.

Today I have been organising for going away. I have been trying to get last bits of washing done and cleaning the house so it’s nice for our return. I have also been emailing doctors and organising appointments for when I get back.

I emailed Prof D regarding getting a prescription for mebendazole. He has referred me to another clinic that uses it and says they should be able to sort me out. I contacted them and they say they would be able to help. Yay! But I need to have a consultation and then a follow up appointment costing £400 and £200... Boo!

I feel quite excited about being away. I want to spend some time thinking about the next quarter of our year. I am nearly finished with the health coaching course and I have plans to get in order. I want to have some new goals and feel fired up and ready to go.

One of the lads that did the Colour Run with me at the weekend has made a video. This really cheered me up today... I hope you like it...

https://www.youtube.com/watch?v=q4LlqMYazr0&feature=youtu.be

 

 

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Triple Negative

Side effects of il2.. where's the paracetamol?

by Claire20. August 2014 14:09

 

It was the first day of the injection yesterday. I collected my il2 injections as usual from St George’s. This time it was different. The lady that was giving them to me happened to ask a research nurse for some alcoholic wipes for me. The nurse objected to the lady giving me the injections as they had to be handed over by a qualified nurse. That led us to trekking across the hospital to the oncology ward to an unsuspecting nurse there that had no idea what to do. I asserted myself and said all you need to do is ensure I am that person stating on the package. Luckily I blagged it and get out of the sharpish. I am sure the research nurse meant well but come on... I have done it five times already!

I did the injection earlier than normal and started to feel the effects at about 8pm. I tanked up on paracetamol and then hoped I would sleep. I awoke about midnight and felt a bit iffy and waited a while before taking more paracetamol. I slept quite well and woke surrounded by fur; the cat and teddy bears that Pete had put in his place. It was lovely.

I dragged myself from bed and got on with my day as usual. I have a busy one today as we leave on Friday for a little road trip. We will be away a while on vacation in France. I am sort of looking forward to it but I find preparing everything a strain on my brain! And I am starting to worry about leaving the kitty behind.

I read up again on the side effects of il2 and why I feel like I do. It says that whilst taking it I could have lower blood cells than normal making me susceptible to infection. The ailments I feel such as aching, fever and generally crappy, are all perfectly normal. I also had a racing heart and on reading, notice that is also a side effect. I think like everything it is accumulating and the side effects come quicker and last longer. Prof D did say that I could reduce the dose myself but part of me thinks it must be working so stick with it.

What I would really like to do over the next few days is...nothing. I want to lie down and watch TV and then read some magazines. I know I will be able to do that soon but I don’t want to spend my holiday lying down the whole time. I like to be active and sight see.

I have been using the nebuliser today again with a combination of distilled water and bicarbonate of soda. It kind of tastes odd and sometimes takes my breath away but I want to keep going with it. In fact I am going to have another hit of it now to finish of today’s dose.

After Thursday I won’t be having any further injections for about a month, due to being away and timings. I feel a bit apprehensive but hope that some time away with family and friends will be enough medicine for me.

As we are driving I am taking everything that will benefit me such as my juicer, nebuliser, yoga mat and more. I hope it all fits in the car!

I can’t wait to spend time with my Bear... Happy thoughts. X

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Triple Negative

I haven't been able to walk since the Colour Run!

by Claire18. August 2014 15:10

 It actually hurt getting up at 5.30am on Saturday morning. But we had arranged to meet everyone from Pete’s business in Witney where the coach would pick us up at 7am.

It was extremely early to be going to the Colour Run in Birmingham but we wanted to ensure that we would be one of the first ones there so we wouldn’t be held up in the huge numbers of people running.

We were actually the first people there! Haha! Right on the starting line, there we all were. We had such great banter all day and mostly stuck together throughout the race. It is no secret that i am rubbish at running at even a 5k race was too much for me! I walked a few times but I still cracked through it in about 40 minutes. It was such fun having powder paint thrown all over you. We all looked a state but had so much fun. After the race there was a mini festival where we all danced and threw paint over each other. We were like a bunch of big kids.

All the while I thought of Leanne....

Donations have been coming in and we would like to thank everyone that has donated so far... We are creeping up to the £20,000 mark. It has been steadily going up over the past two years and we aim to keep going. It all helps, we hope.

I have to admit I haven’t been able to walk properly since the run. Despite exercising daily these muscles are crying out, ‘what have you one?’ Pete thinks it might be time to take up running...Gulp.

The rest of the weekend I felt under par. I had the feeling I was coming down with a cold. You know that sore feeling in the throat and the twitchy feeling in the nose. I must have felt poorly as I left my friends birthday bash early to get home to bed. Even when I woke yesterday Pete said I think you better have an afternoon nap. I looked in the mirror and the state of my under eye bags, i had to agree with hm. He tried to snuffle me up with rugs on the sofa but I just wasn’t having it. I had FOMO; Fear Of Missing Out. Whilst Pete mowed the lawn I wanted to do something too.

I had a lovely weekend and I have to say I feel a lot better. The cold hasn’t taken hold (I’m a poet and I don’t know it! Haha!) and I’m back working today and feeling great.

My vaccination site on my arm erupted quite a bit over the weekend, but at the moment seems to be ok. I am sure it be oozing by tomorrow.

Tomorrow I am back to St George’s for my next round of interleukin 2 injections; round five. I’m not overly looking forward to going through that again but needs must.

Here are some pictures of the Colour Run...

I am so very grateful for the guys taking time out of their weekend to support such great causes and for us. I'm very touched.

 

                                       

                                                     

                                          

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Tomorrow we run in memory of Leanne....

by Claire15. August 2014 12:38

 I went down to London yesterday to the London Clinic to have the next IMM101 injection. I am getting used to hopping on the train and underground and have it timed to perfection. Yesterday however despite my fine tuned plans I arrived to find that all the trains to London were cancelled.

Oh no... This was due to someone throwing themselves into the path of an oncoming train. How awful. My initial thoughts were how am I going to get to there in time so I hopped on a train to Reading. Once there I noticed a train just about to pull away and it said it was going to Paddington even though it passed through Slough where the poor soul had taken his life. With everything crossed I hoped that I wouldn’t be stood on that train with hundreds of others for hours on end. Thankfully the Universe was listening and we got there with not much delay.

Whilst travelling I spent time thinking about how confused I felt. I felt obviously put out by the disruption this one individual had caused to thousands of people that day. I felt so very sad that he decided that his life wasn’t worth living and what an awful way to end his life. I felt absolutely gutted for the train driver (whom I was told was his birthday yesterday) who had to witness the horrible mess made by a speeding train and then I thought how life is so crazy. Here I am trying desperately to stay alive and well, doing everything in my powers to find a cure or at least something to extend my life.  Then there are those who simply cannot cope with their life and want to end it all in an instant.

I have never understood depression and it has been bought into the spotlight this week with the death of Robin Williams. I don’t think I will ever understand it. I didn’t understand it when my ex boyfriend decided to hang himself and I lived with him for over 6 years.

That’s life I guess.....

Since the injection my arm has as usual gone into an explosive mess. It has reinfected one of the old sites and I currently have huge blisters which will open up and become all pusy again. The price to pay in the quest for wellness.

 

Tomorrow Pete and I along with his colleagues and about 150 other people will be doing the Colour Run in Birmingham in memory of our friend Leanne Muir who passed in June. We are also raising much need funds for our chosen charities; Breakthrough Breast Cancer and The Cancer Vaccine Institute. 5 kilometres may not be that much a challenge and having paint thrown over us does seem fun but every step of the way we will be thinking of a wonderful women whom we miss every day.

If you would like to support us by donating please go to the link below and leave message when you donate.

http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=makingtriplenegativeapositive

 

Thank you in advance and I will post photos of our antics after the weekend.

Happy Friday everyone!

                                               

                                                       

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I want to have a little rant....

by Claire12. August 2014 17:37

 I feel like having a little rant...

I received an email from a lady at GcMAF asking me for some feedback on how I was and if I had received any scan results lately.

I waited until I got my results and replied and explained that I had stopped having the goleic acid injections at the end of May and that I have since been having the bravo probiotic yoghurt. I explained the whole situation that I have had ablation and immunotherapy and also reintroduced naltrexone (because they say it stops the GcMAF from working)

Sunday I open up my emails and find one from GcMAF again. The email address is only ever info@ but I assumed it would be from the same lady who had emailed me before.

Nope. It was from the man in charge who runs the company; David Noakes.

His email was quite short and blunt. He stated that I hadn’t divulged the whole treatment protocol, that in fact I had only given a quarter of what is expected and that if I expected to be cancer free that I would need to do all aspects of the treatment protocol  for 6 months to a year after leaving the clinic. If I am not clear on what the treatment protocol is that I should go to the website and take a read.

I have to admit, he really pissed me off. I met him briefly when I went to Switzerland this year and he was slumped on the sofa with his big messy eyebrows and said,’ Who are you?’ when I came out of treatment. I extended my hand and told him my name. I instantly took a dislike to him.

My friend Leanne, who sadly passed in June, also had some experience with David Noakes. He spoke to her at length on the telephone (when she could finally get through!) and basically sold to her that GcMAF would definitely cure her -100%. I don’t know about you but my tail tingles when these sorts of claims are made. If it was that easy everyone would be doing it.

Luckily, I overlooked him and have continued with injections for some time and am now using the bravo probiotic yoghurt. It seems such a shame that one individual can cast such a shadow over a potential aid in living with canSer.

I have today read the website once again. They have thankfully updated it and it doesn’t seem quite as unprofessional as it did and gives a lot more advice on it than before. I do find it quite amateur to suggest such basic things however I guess not every canSer patient is as researched as some.

Here is an excerpt of the four areas that you should cover to become canSer free;

If you have a cancer with tumours, for the Home Protocol you need:
1. For stage one, a standard dose of 0.25ml Goleic a week, for stage 2 two doses a week, late stage 4 up to a full 1ml a day. The more the better. 2ml a day has been taken without side effects.
2. 10,000 IU of vitamin D a day,
3. Eat white meat, fish and vegetables,
4. No sugar or carbohydrates (so no cereals or bread etc) which feed cancer.
5. If your weight drops below your perfect weight for your height, take Branch Chain Amino Acids (BCAA) from a vitamin shop, or Master Amino Acid Pattern (MAP) from Dr Reinwald Healthcare.

If you add drugs to this, the more you add the more you will reduce your chances of success. More is less.

Don’t stop the Goleic until 8 weeks after you have scans proving you are cancer free, or 8 weeks after your nagalase drops below 0.65.

We are just as successful with pancreatic cancer, and with our two multiple myeloma cases, but it takes doses of two ml a day initially. We’ve done laboratory experiments on leukaemia which indicate we should get good results, that too will need 2 ml doses, but intense chemotherapy does make leukaemia treatment fail.

Avoid the five main causes of cancer
1. Too much sugar
2. Lack of vitamin D3
2. Poor nutrition lacking in amino acids and trace metals,
4. Lack of oxygen and exercise,
5. Severe shock stress.


Now I was advised to take 2.2nl every other day. That came to about 2000 Euros a month. That’s a lot of money but I guess when you want to live you will pay any sum.

I have now seen that they have opened more clinics across Europe including Germany. The cost for one week in the clinic is 6000 Euros. Wow. It’s doubled in price. They recommend you have about two or three weeks to see a reduction of approximately 25% in your tumours. This still astounds me as they can’t possibly record the size of the tumours that are in the lungs, like mine.

It says on their website that if you take medication at the same time as the GcMAF protocol that you will not get a good result.

‘If you add drugs to this, the more you add the more you will reduce your chances of success. More is less.’

WHAT?

I don’t know who wrote the content on their website but things like that really do make you doubt the efficacy of the product and treatments provided.

I find this really difficult. I think that for me, GcMAF may have helped kick start my body into fighting canSer. That combined with everything else I have done since March; ablation, immunotherapy, dendritic cell therapy and more. It has worked for some people and their testimonials are on the site. I personally know one of them. But it really gets up my nose when someone like ‘him’ bleats at me in an email. He has no people skills and isn’t a scientist or oncologist. He is a salesman who wants people like us to pay thousands to him. I personally think they should stop him from taking phone calls, emailing patients and making outrageous claims. It gives GcMAF a bad name.

Rant over... I wonder what his email reply will be? I will keep you posted.

 If you want to read website then go to;

https://www.gcmaf.eu/

 

Oh my goodness.. I just came across their other website; www.immunocentre.eu. Their feedback page has an entry by Immuno Biotech Ltd (the company that owns GcMAF) I am speechless...

'The most extraordinary case so far is a 69 year old woman from Cheshire. She arrived at our Lausanne clinic with breast and lung cancer, and further secondaries in the brain. The cancer was so far advanced she walked upstairs to the treatment room, and died. Her heart had stopped, no pulse, no breathing.

Her family were not happy, and made it very clear.  Meanwhile our two nurses began mouth to mouth resuscitation and pounding the chest of her dead body.

After 45 seconds they restarted her heart.

Lyn had called an ambulance and got 2.5 mil of Goleic into her. To our great relief the Swiss ambulance crew just wished to know if it was euthanasia, because if so, they would not resuscitate her. We said “No way, she’s got to live!”

The next morning the hospital sent her back with the comment she was too fit to be with them. In our view, that’s the Goleic working overnight.

Lyn then got a 40% tumour reduction over the next week, using what we call “The Swiss Protocol”,  which included Goleic every day, and sent her home to do our “Home protocol,” which her family are following accurately.

There weeks later the family returned to Lausanne to thank us.

We are expecting her to be cancer free about September 2014. She’s making good progress.'

If you could see my face right now...

 

 

 

 

 

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Triple Negative

Squeezing everything out of life....

by Claire11. August 2014 13:53

I am so sorry for the lack of blog since my last one, which was quite an exciting one! I have been ultra busy since then.

Last Wednesday I went to London to collect more interleukin two injections and also had a quick chat with Professor Dalgliesh. He seemed very excited when I told him that Professor Harris had supported his work and said that he feels I should continue with his treatment. Professor Dalgliesh said he really respected Professor Harris. He wishes that it was the same for the doctors at the Royal Marsden. It seems crazy that all cancer doctors aren’t all supporting each other. This is why we are no further forward with a cure or a vaccine.

I started having the injections that evening and finished Friday evening. As before, I had fevers and very disrupted  sleep. I eased the pain and fever with paracetemol but it seems to have quite a bad effect on my stomach now too. I get stomach aches when having my green juice and supplements in the morning and over the weekend I even felt nauseas for a while. Pete says it seems to affect me worse than chemo did. I felt ill over the weekend, generally under par, emotional and grotty. I even went to bed last night feeling achy and off. I had diarrhoea for most of yesterday too.

I actually forget that I have been having the injections and start wondering what can be making me feel rough. But then I think back to the last round of injections and remember feeling pretty rough for that weekend too. I think maybe it is an accumulation of it. The lumps where I inject in my tummy are still raised and itchy. I hope they go away soon.

Thursday was an exciting day for me too. I hopped on a train to London yet again, this time to meet my friend who arrived from Ireland for a few days and to go to a photo shoot. Breakthrough Breast Cancer had contacted me and asked if I wanted to take part in a magazine feature. Prima Magazine as part of October Breast cancer Awareness Month wanted to tell the stories of five breast canSer survivors, me included. I arrived at a cool studio in East London and was greeted by Jo from the magazine and the photographer. There was lots going on with the other ladies choosing clothes and being made up behind a screen. I have to admit I had thought on the way there, ‘Why did I agree to this?’ As usual my nerves were kicking in and I am not great in front of a camera. My cheeks twitch and I feel a bit like Chandler from Friends in the episode where he has his photo taken with Monica celebrating their engagement. I knew it was going to be fun and it’s so lovely to be asked and to think that people may want to read about me.

I was shown a rail of clothing and met the stylist and her assistant, who said I looked trendy and that she hadn’t bought anything along for someone so trendy. That was really sweet of her. I did find something I wouldn’t normally wear but all the other ladies were wearing bright clothes so I decided to join in. Being made up was very relaxing (I especially liked the eyelash extensions. I looked like a cat from a Disney movie!) and talking to the other ladies was so interesting. We had so much to share about our own stories and they have all overcome so much.  The ages started from 34. Many of the ladies there are part of other campaigns for other charities such as the Look Good, Feel Good campaign and the Breast Cancer Care fashion show later this year at the Grosvenor Hotel. They are all so confident and brave and I thought they all seemed to love life. We discussed juicing and diets along with our experiences with chemotherapy. I was the only one there with secondary canSer I believe. I discussed with the stylist who is also a survivor, the treatments that I am currently undergoing. Everyone I spoke to seemed in awe and didn’t really know anything about the treatments such as immunotherapy.

When we finished there my friend and I hopped on the tube and met Peter and his colleagues who had been working in London all day for a cheeky little drink before our journey home.

Friday I spent with my friend showing her around Oxfordshire and having a lazy lunch and did a spot of shopping. Back home, I did her a shellac manicure, HD brows and teeth whitening. She was well and truly pampered. I loved making people feel happy. That evening we went out for drinks and a meal. All throughout these days I was trying to ignore the side effects of the injections. To be honest I struggled at times.

The weekend flew by and by yesterday I felt a mess. I wanted to do so much but I really needed to chill out. Pete looked after me as usual by rugging me up on the sofa and Kitty even joined me for Sunday afternoon cuddles. The first time in months.

Throughout this I have been trying to keep up to date with emails and have been contacting Dr Hembry in Bristol. I have enquired about having some infusions. I don’t want to become complacent with the treatment I am having and I believe keeping canSer on its toes is essential. The infusions I requested are; artemesinin, NaBic, B17 and salicinium. This is because my RGCC blood test showed I would be responsive to these. Sadly Dr Hembry can only help with one of them so has given me details of a doctor in London who I have today emailed. He has already replied and said he can help with salicinium and artemesinin. I have to get consent from my gp or consultant before proceeding but in the mean time I will get more information and the costs for it.

Today I am back to my usual rituals and I slept pretty well (I love fresh bed covers!). I did wake for a while, worrying about stupid things, not health related. It’s unlike me but apart from that I feel much better today. My stomach is aching less and I feel much brighter, so much so I could exercise this morning.

There is so much coming up in the next few months I think I am feeling a bit overwhelmed. Silly me. Letting my head take over again. I must take a deep breath and take it all in and enjoy life.

Here are some snaps of the photo shoot. I will be featured in Octobers’ issue of the Prima magazine which is out in September.

 

                                            

                                                  The lovely ladies organising the day....

                                                      
                                                                     Styling us...

                                                  
                                                         A quick snap of a four of us....

                                       
                                                     A sneaky peek of the computer.....

                                                   
                                                   Modelling skills come naturally to us...

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Triple Negative

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