Booked… for Wednesday!

I had a call on Friday afternoon from Nichola at the Gamma Knife centre. She explained in huge detail what had happened at the MDT last Monday. She described how they saw my images and all of the doctors present were ‘astonished’ at my results. Only two months earlier there were four lesions present but […]

One small one still in there…..

Monday morning I had a call from Liz the CNS at St Barts. She said that they had checked out my images and that they can confirm there is a small tumour that requires blasting. She then paused…. I told her I wasn’t surprised because I saw Doc Plowman on Friday and he suspected something […]

Today is Good Friday… Not the Easter kind.

Fridays are always such a happy day; the weekend to come and feelings of,’ Yes I’ve got through another week!’ Today however has been even more off a ‘fist punch’ day. Last night, feeling overly tired we headed to bed early. I didn’t think Ii was nervous or bothered about heading down to the hospital […]

I am not dramatic at all… am I?

Our journey back to the UK was as expected, fractious. I always knew it was going to be hard. It always is when you are up against time. I thought I had given us plenty of time to get to the Eurotunnel but sadly there was a glitch at the clinic. As we were leaving […]

Passion…..

 Tempers flare and frustration sets in when we should be able to get onto trials and “experimental” or non-accepted drugs in the UK that we are otherwise “allowed” to pay for and receive. That’s what’s happened to Pete right now. Probably at the end of his tether having to spend over a week with me […]

Learn the art of patience…..

‘Learn the art of patience. Apply discipline to your thoughts when they become anxious over the outcome of a goal. Impatience breeds anxiety, fear, discouragement and failure. Patience creates confidence, decisiveness, and a rational outlook, which eventually leads to success.’ I have been trying so very hard to be patient. But last week I thought […]

Booked but no confirmation as yet….

I received an email from a lady working at the gamma knife centre at St Barts yesterday, just past 5pm, saying that Dr Plowman wanted me to book in for another outpatients appointment and then he would let her know the next step. She asked that I call his secretary the following day to book […]

Gamma Knife an option?

Friday morning Bear and I went to London to see the consultant regarding gamma knife. I’ve been there before and in typical St Bart’s style my MRI images had not been received. We did however see the consultant who I really like. He, much like the rest of the medical profession, seemed to be in […]

Letting go of the niggling thoughts…

Things are going really well on a day to day basis. It’s unreal that only last week I was having treatment in Germany. Thursday and Friday we got back into routine and began a new regime. Pete and I desperately need to feel better and that means making lifestyle changes. Pete wants weight loss and […]