I’m writing this blog from my hotel room in Duderstadt in Germany. We stayed at Heathrow Saturday night and boarded an early flight yesterday to Hannover. From there we drove to our current location ready for treatment. As the weather has been pretty dreary we decided to settle down for an early night besides we both felt exhausted from being up since about 4am. I had 12 hours sleep last night!!! And even then I feel I could have stayed in my wonderful slumberland for longer.
I have to admit I felt a bit nervous about treatment today. I had been informed that they would be introducing a new addition to my treatment regime in order to really get this canSer in remission- we hope.
As explained before they have introduced Zometa into the regime in order to stimulate the Gamma delta cells inside me. Gamma delta cells are a different type of dendritic cell which have a distinct T cell receptor. It’s hope that this increases their ability in the immune response. We have seen startling evidence of this in the MRI scan of a woman with advanced lung canSer who only had 20% lung capacity remaining who after three months showed no evidence of disease.
Zometa was infused intravenously into my arm at only 2% and it is hoped there would be no side effects as it is such a low dose. As well as this I had an injection subcutaneously of interleukin 2 which helps the gamma delta cells to be stimulated also. This was all in addition to my usual treatment of Newcastle disease virus injection and heat and air treatment. It has been three hours and I feel absolutely fine.
We did discuss whilst there my next visit, including the need for me to have more cells extracted and the fact that Peter would need to be a donor of gamma delta cells. Luckily all he needs to provide is 200ml of blood which will get sent away to be treated and prepared to then be injected into me. Mind boggling eh?
On every visit we notice more visitors from different nationalities. We are so intrigued to know if they are all here to see Dr Nesselhut. The clinic certainly seems busier than normal. Is this a sign that his treatments are working? If nothing else he certainly gives canSer survivors hope and some life extension.
I was asked how many more times do I have to come here for treatments. The simple answer is forever. I am not sure how often it will be whether it will be more infrequent over the next few years or if indeed my condition worsens and I have to come more often but Peter put it perfectly. He said if its forever that’s fine as forever together is almost long enough. Love him. X