Booked… for Wednesday!

I had a call on Friday afternoon from Nichola at the Gamma Knife centre. She explained in huge detail what had happened at the MDT last Monday. She described how they saw my images and all of the doctors present were ‘astonished’ at my results. Only two months earlier there were four lesions present but […]

Passion…..

 Tempers flare and frustration sets in when we should be able to get onto trials and “experimental” or non-accepted drugs in the UK that we are otherwise “allowed” to pay for and receive. That’s what’s happened to Pete right now. Probably at the end of his tether having to spend over a week with me […]

Off again…

I haven’t been ignoring you but I have been having fun… again. Even amidst all the drama we have plans and I aim to keep hold of those for as long as I can. Pete and I had planned to visit friends in Ireland this weekend and the booking had been in place for months. […]

Deflated and unsure…

Pete and I went to bed early last night. So early we had about 11 hours sleep! Boom! I love the Zum Lowen’s beds. Dragging myself out of the warm and comfy slumber this morning I scooted to the clinic to have my bloods drawn ready for up and coming visits. I was due to […]

A quick visit to Leipzig

Another night of very disturbed sleep is leaving me with very sore eyes. I have no idea why I feel this way as I should be very relaxed with all this time on my hands but I guess that’s often the way. We checked out of our hotel in Duderstadt this morning and I attended […]

European tour- days one to four

We’ve had a brilliant few days. Driving all over Europe never gets tiring. Not for me anyway! Pete doesn’t seem to mind either. This weekend was spent walking and taking in Amsterdam. It’s not a place I’ve ever really had a desire to go to but I would highly recommend it! Unsurprisingly the red light […]