Cheeky midweeky…

I had a visit to my local hospital Tuesday to see my oncologist Professor Harris. It has been months since I saw him and apart from emails regarding treatment options we hadn’t had any communication. It was good to see him. He seemed pretty happy. He said that he had received a very nice letter from Professor Dalgliesh. They seem to really like getting letters from each other. It strokes their egos. I think it’s great because I get good service, as it were.

We discussed my current treatment plan and he said it hopefully the other lesions will go. He said there is no point me going on chemo until we know what the ablation and immunotherapy do. I am booked to see him for an update in July and I think I will also ask for a ct scan then to see what is happening on the inside. Fingers crossed the immunotherapy is doing its thang! I had no intention of going on chemo yet (if ever).

What I do know is that the immunotherapy jab I had last Friday is huge and very yucky looking. It’s sore and nasty looking. You can see for yourself in the picture. It’ll all be worth it if it’s working. It is clearly doing something!

 

 

Prof Harris said I have the biggest file of all his patients, especially as they are not treating me… ha ha! He seemed so very pleased and bright. He’s cool in my books.

 

I had an email from Dr Nesselhuts clinic advising me that I need to contact RGCC who made the vaccine for the EBV and to ask for it to be reissued to my home address or to the clinic for my next visit. I replied and told them they need to contact RGCC and request it. Why would I do it? They say that it is the manufacturers fault but I still feel they have to request it. Hopefully when I go in July the vaccine will be there…

 

Yesterday I had acupuncture and auricular therapy. We have been discussing the fact the lesions that are growing are mainly in my right side. My therapist says it could be the liver is stagnant. He loaded me full of needles including in my ear and I lay there for about half an hour. After I felt all buzzy and stimulated. He is such a nice guy…

Last night Pete and I had a lovely meal and overnight stay at a local hotel. We decided having ‘cheeky midweeky’s’ as I call them, are good for the soul and a nice way to keep things fresh and exciting. Then this morning we had a champagne breakfast before we got on with our days. So decadent but lovely…

 

 

 

My friends have posted on FB today that they are going to be climbing Ben Nevis this weekend in preparation for the Three Peak Challenge they are going to do for my chosen charities later this year.

Well I hope the weather improves as it has been tipping it down here today! Has the summer gone already? I only just started wearing my flip flops…

Here is their donating page for anyone that wants to support such a courageous attempt;

http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=Kittysclimbers&isTeam=true

 

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