I guess by now, you know that if it’s a Bear Blog, then it hasn’t been a good day.
We are in Germany for treatment and we had two main objectives today. Firstly to unravel the tapestry of inconsistencies that have accrued over the last 4 months and then to have a successful gamma delta cell treatment.
The good news is that we achieved one of those goals. Dr Nesselhut (Jr) was very candid with us and we are now able to understand the reasoning behind decisions in respect of treatment levels. If that all sounds a bit MI5 it’s because it is sensitive and not really for release. The most important confirmation is that Claire has not suffered any degradation in treatment and matters are now being addressed, so onwards and upwards. The bitter sadness was again present though when the explanation of where the donor cells Claire had last time became apparent. Donor dells are only available if they are not “used”. Being a bit think skinned, I then managed to ask “Why wouldn’t they be used?” It’s a canSer clinic Bear – why did I think they weren’t used. Have never felt so sick.
Achieving point 2 proved a lot more problematic.
Having confirmed that this time the Zometa (chemical used to infuse the cells – that destroyed mine last time due to a fault) was good and I had managed to donate a good amount of cells for Claire we prepared to administer the vaccine. The dendritic vaccine was to be given afterwards directly into the lung intravenously and half under the skin of the arm.
Claire was attached to the automated chemo style syringe dispenser and the doctor and nurses said see you in 30 minutes. Almost immediately Claire felt pain in her chest that spread from the front to between her shoulder blades. Being a hard east end girl she told me to “leave it” and let the treatment continue. After about 20ml of solution and about half way through, I noticed other symptoms and realised she was going into shock.
The medical staff were awesome. They arrived like a battalion of winged archangels and immediately realised that she was having an extreme allergic reaction that was enduring shock. Her blood pressure was dropping and they feared cardiac arrest.
By now Claire was pretty much unaware of what was happening but she was administered an anti histamine, calcium and another drug via oral spray that I could not catch the name of.
This seemed to do the trick and her pressure to was restored. However by now she resembled Will Smith in Hitch and had swollen lips, puffy itching and watering eyes and her skin was so red and hot it looked like it may split. Even more oddly the injection spot used for the last DC vaccine had come up on her arm like a golf ball.
We all sat back and waited. After about 45 minutes Claire could speak and was (can you believe it) “keen” to crack on with the treatment. As she put it “That’s £5000 of my cells in that syringe and I want them!”
Needless to say the Doctor refused this request and sent the remaining vaccine to the lab for a thorough investigation. It is a real mystery as she had donor GD cells last month and it was fine. In true German joke style the doc told Claire, “you are allergic to your husband – yes?” (many a true word said in jest)
He also refused to administer the dendritic vaccine into the lung and couldn’t use the arm as this still resembled a lunar landscape, so he injected it into the stomach. How that didn’t make me sick I’ll never know.
We then had to wait another 45 minutes to make sure she wouldn’t turn into the Incredible Hulk before a mad dash back to Hanover airport. She is still a very poorly bunny but a night in her own bed and some loving hugs should put her right, while we wait with baited breath for the lab results.
How amazing if this turned out to be the sequence of events the actually created a cure? I wait for my little miracle to happen. Bye – Bear