Phew a few hectic days…
Friday I had a brilliant acupuncture session with a new therapist recommended by a friend. He did auricular therapy on my ears too which was highly enlightening! It was interesting when he worked on my right side there was a definite resistance but when he placed a row of needles along a corresponding meridian the area was supple and relaxed. Amazing.
I felt great and very chilled after.
BUT then Friday night I awoke with immense pain on the right side of my chest and under my shoulder blade. It got a little worse when I breathed in deeply. I was highly stressed and at 2am awoke Pete who went into calming mode. He said it all sounded muscular and could feel very sensitive. We had tea and put the heat lamp on it. I went back to bed for a few hours before our weekend was upon us.
I was feeling particularly sensitive generally I think. That day I had news that my friend’s canSer had progressed further and it really upset me. I think more so because I haven’t had any conventional treatment and have no idea if GcMAF is working. I didn’t realise I was such a sensitive flower but your mind plays games with you.
Prof Dalgliesh had emailed Friday to say that hopefully by Monday he would know whether I can go on the vaccination trial and that he is still waiting to hear about the ablation date because a theatre needs to be booked for two hours with two surgeons.
I felt really bad about waking Pete up on Friday night as we were both so looking forward to having a lovely lie in since Pete gets up at 5am every morning for the gym before going to work.
During the day on Saturday I took plenty of pain relief to see me through. I felt fine and we had friends visit, so went for a lovely super food salad lunch. In fact it was a day of amazing food as we went to a fine dining Indian restaurant in the evening.
That night I awoke again in immense pain but kept myself calm and tried to stop my mind worrying. At one point I coughed and it felt like a sense of relief. But getting up I felt terrible. Pete said I should call the doctors and get some piece of mind but he still felt it was muscular as I wasn’t having any trouble breathing.
The GP I saw was brilliant and I had my first ever ECG! She felt I should have an x-ray as she couldn’t be sure if I didn’t have a pulmonary embolism. What?!
We had a quick brekkie with our friends and then spent the rest of the day in Emergency Assessment Unit. After many questions, blood taking and then finally an x-ray it showed that all the pleural spaces are clear, no infection, no collapse and in fact it doesn’t appear that there are any new tumours. In fact it looked like there was almost nothing in my left lung. The right lung you could visibly see tumours in the top and bottom lobe. Of course a ct scan is better for this but as I have one booked on the 24th April I convinced them to let me go home. They are none the wiser what’s wrong with me but they know what I don’t have. I am relieved as I am going to taking a flight this week and now I know I can relax.
The sun had been shining all day and I felt terrible that poor old Pete had been cooped up with me in doors. Luckily we got back for a few hours of sun and chilling in our blissful garden then got cracking with some work. We mowed and strimmed the lawn washed our cars and made some delicious fresh stew. But we were wrecked. We both had an Epsom salts bath, soaking for twenty minutes then we had to go to bed.
8.30pm and I was sound asleep. I didn’t wake with any pain, although I had taken a 1000mg of pain relief. And this morning it feels much better. To the point where I felt I could do some stretching, yoga and even some cheeky little squats with weights.
I have put on quite some pounds recently, which is good everyone keeps telling me. More of me to fight the disease.
I have felt fine for most of today and have a really busy day working with clients but I now feel drained and my energy is quite shaky. I have a sore throat and feel like I am coming down with something. I know it’s from stress, all bought on by myself. I have been worrying myself senseless.
The next few days I am not working as much and I plan on doing minor chores and getting ready for a trip away. But most of all taking it a bit easy.
I am always surprised with life throws at you and you can never tell what tomorrow may bring.
I kind of think that it was a good thing having this pain in my side and the visit to hospital. I know my lungs are functioning just fine and I feel even more determined that ablation is the correct route for my treatment plan.
On Saturday we had some good news via letter. Prof Harris, my onc, wrote to say he had received a letter from Prof Stebbing who has suggested I have gem/carbo regime and that I would be eligible for two of this trials. Prof Harris wrote that he thought this was a great idea and that we would save Eribulin for the future if needed. Bonus! Prof Harris had turned me down when I asked but now has changed his mind!
So if I do go down the chemo route then at least I am having what I wanted and hopefully no hair loss. I know it’s minor but small things make huge differences.
I just want to send my love to a dear friend who is starting a new regime today… she will feel rubbish apparently but it’s going to work this time!