Research me! I’m a living breathing medical trial…..

Had the sad news today that Bernie Nolan has died from Breast canSer. It makes it really hard when a household name dies so young. I hope she fell asleep peacefully. Thoughts and prayers go out to her family.

I got to meet Ellie Copson today who is featured on the specialist consultant’s page. She is a senior oncologist at Southampton Hospital. I have been in touch with her th9ourhg my sister since I was diagnosed with metastasis last July. She was kind enough for me to meet her and discuss my options as they stand. I have concerned with being on chemo for so long and she did things are working and the canSer is stable that she would personally if I were her patient let me more lenient on the time in between chemo cycles maybe extending the break from one to two weeks., especially as I have been on for it more than 6 months.

She said the difficulty in that they have little evidence of patients on immunotherapy so can only base their plan on what they know which is chemo. Obviously chemo strips the bone marrow so it isn’t ideal. The other problem is  if I was to take a longer break of say a few months off chemo is that it could be when I start it again it wouldn’t work any longer. Now I believe that there are no definite answers and they really don’t have evidence of any of the outcomes.

Ellie spoke about some young patients just like me that look really well and are living life to the full. This does make me wonder how many of her patients has she had that are still living years on with a stable disease or maybe no sign of disease? Or have they in fact all died?

There never seems to a finite answer and it does always seem that there is an underlying thing that I will almost certainly die from this disease eventually. God I want to talk or even see someone that is living well ten years on from their diagnosis of terminal disease! I can’t believe that they have all died? Where are they?

Ellie was very kind to me and has said any time I have any questions that I can ask. I pray that my body doesn’t give in and that all that I am doing will win this battle. I am a living breathing medical trial.

I think that if I continue to have good scans and they come back being clear one day that I will have to risk stopping chemo. When I mention the drugs and the reishi I am on, Ellis just looked bewildered. It’s so far out there for a scientist to understand. She is currently researching how breast canSer in young woman especially obese women don’t survive or at least cope as well as those whom are a healthy weight and lifestyle. They are now admitting lifestyle is a factor in treating the disease.

I want to offer myself as a trial for her. Research me!

Anyway hoe today to see my bear. I’m so excited and I’m thrilled we are going to be having a heat wave. Tra la la!

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