Yesterday I was back up the Churchill hospital for my clinic appointment. Unfortunately there was an immediate 60 minute delay (I’m not complaining!) due a burst water pipe, which the cleaners said they could’t clean up because of health and safety…. So who could clean it up?! Anyways.. funny. The consultant I saw just asked how I was and prescribed me my next round of chemo. I didn’t tell her about Germany as I was asked. I have confirmed my CT scan is in three weeks. The consultant did listen to my chest and back whilst I did some deep breathing and said that the lower back part of my lung wasn’t taking in as much air.. Oh my god! I thought.. But then said, ‘It could just be my listening though’. Then looked at the old scan reports and said ‘Yep, my listening it is’. I had a mini panic and then thought I am not out of breath so I know there is no problem there. She said that I shouldn’t be experiencing any side effects other than sore hands and feet. That is not what I got told by the other consultants.. She said on my doasge I wouldnt get diarrhoea, nausea etc… She said to expect my hands to get worse over time and to invest in a good hand and foot cream… OK …..
I then went to the pharmacy and had to wait another hour as the prescribtion hadn’t been screened and forwarded to them despite having been written three weeks before. Again I’m not moaning, just saying… So I spent 4 and half hours for a ten minute appointment today, needless to say I didn’t get a great deal else done.
I did however update the website information and sent it on to, my man that can, with the dieticians info along with a few tweaks in the nutrition section and adding the info on metformin.
Wow, metformin looks so exciting. I have googled today metformin and triple negative and it actually shows on Wikipedia (I know it’s not that reliable but still), and it says that it is potentially going to be going through trials as the widely-used diabetes drug metformin holds promise for the treatment of triple-negative breast cancer.In addition metformin may influence cancer cells through indirect (insulin-mediated) effects, or it may directly affect cell proliferation and apoptosis (death) of cancer cells. Epidemiologic and preclinical lab studies indicate that metformin has anti-tumour effects, via at least two mechanisms, both involving activation of the AMP-activated protein kinase(AMPK). A large-scale phase III trial of metformin in the adjuvant breast cancer setting is being planned. Now I know it may not be great for me in position but it’s very exciting and as it has very little side effects and is cheap- this could be so useful. I am pleased I am taking it anyway. You never know it may help!?
I had a reply from a charity that heads up a trial at Kings College London in conjunction with Breast Cancer Breakthough that is focussing purely on triple negative breast cancer. Here is the link to take a look;
It’s is being headed up by Andrew Tutt, whom we have been told is highly regarded. I would quite like to have an appointment with him to know more.
I called the hospital on my return yesterday to get the results of the bloods that I had taken. All seems fine and I am good to go to start my next round of chemo, which is today. So down the hatch…
Today, I have been struggling a bit. Pete got up at 5am and left at 6.30am. Unfortunately I couldnt get back to sleep but insisted on staying in bed till 7.30pm by which time I had started to feel sleepy. I have been a walking zombie all day! I cannot keep my eyes open. I have my yoga lady arriving any minute now and feel a bit better but I think I must have worms! I cannot stop eating either? I don’t even feel hungry yet I want to eat!
I have been drafting the cards for the little wish bracelets I am going to make today also. I am so impatient and have such grand ideas.. I have enough beads and cord to make up to 500 bracelets.. all by hand, by myself. I know it’s going to take time but I hope I can sell them all. I want to make money for charideeee. Ha ha!
Back from doing yoga and I feel so much better now. Plus the little swarovski crystal beads have arrived for the bracelets.. eek! So exciting. I think I may have my work cut out… Oh well.. it will keep me occupied and it’s all for a good cause. I hope people want to buy them…