My trip to Tooting was a doddle on the train last Thursday. I arrived nice and early and the lady who was meeting me had everything prepared. I packed my bag and got straight back on my way home again. Simplezzzz.
I started that evening with the first of three interleukin 2 jabs. I found a new little area on my tummy to inject and in it went. That night I started to feel headachy and flu like again. I didn’t sleep at all. I am so surprised that 3ml of the stuff has such an effect on me. I am not complaining!
The next day I did the second one and I thought I definitely won’t feel rough again… wrong! This time I took paracetemol to alleviate the symptoms and slept much better.
Since then I have also started on the scorpion venom… I know it sounds hilarious. I take 1ml under the tongue and hold it there for five minutes. Seems fine so far. It’s too early to know if it is actually doing anything. I am repeating it three times throughout the day.
Saturday was an exciting day… For the last fifteen years Peter has wanted to go to the Air Tattoo at RAF Fairford. I booked it for his birthday treat and invited some friends up from London. The weather forecast wasn’t great but we had everything crossed.
The day went like a dream. We watched the whole display in an enclosure with brunch included and the Pimms flowed. The sun shone and we were so happy we could see the aircrafts making their beautiful patterns in the sky. For us the Red Arrows are always the best… well they are British after all! Pete had a small tear… Bless him. We both said a big thank you to the Universe for the day being so lovely.
Yesterday we said goodbye to our friends and headed down to Brighton to our boat. Sadly we had to pack up our belongings on her as she is being sold. It isn’t complete yet but hopefully it will go through. Reluctantly we are selling because we need the funds for more treatment. Pete was devastated and it was actually very emotional being there and seeing how wonderful she is. She has looked after us through some turbulent times and we have laughed, danced, sang, had barbeques, cuddled up and cried on her in the last four years. She has been there the whole time I have been diagnosed. It’s the only place Pete sleeps like a baby in her womb-like cabin. It’s like she has a soul and we felt like we were betraying her. I felt terrible. I have never adapted to boating like Pete so for me I thought it wouldn’t be so hard to let her go but actually I felt such sadness and guilt combined. I hate the fact that Pete has to let go of something he loves so much. But he says he loves me more and will do anything for me.
The fact is ‘things’ don’t make you happy. We have many memories- good and bad of Waterloo Sunset but ultimately we have more freedom and more new experiences ahead of us. With great sadness we left her behind all ready for new adventures with someone who cares as much as we do, hopefully.
Last evening was the World Cup football final; Germany against Argentina. As you know we are huge German fans. I had crossed everything in the hope that they would win just so that Pete’s day would improve ever so slightly…. And they did! Yay! There was a least a little smile on the Bears face before bed.
Today is Bears birthday and I can’t wait for him to come home and open his presents and have a wonderful evening together. He may be older but he gets better with age and more loving and caring, if that is at all possible. Happy Birthday My One! XXX