Side effects again dominating….

Last night I had the second il2 injection of round five. I tell you, the side effects get worse. By 8pm I had full shivers and felt rubbish. I gobbled up paracetamol again but they didn’t have the same soothing effect. I went to bed in a pickle.

Thankfully though I did kind of sleep. I slept on my back all night so I know I didn’t properly sleep but at least I felt rested this morning.

The cat was very happy though. She snuck in before we shut our bedroom door and she slept on or right up close to me all night. At one point I heard her drinking from my glass of water on my bed side table! Lucky I didn’t need any then! It must have been a cold night, that’s all I can say, because the temperature I was kicking out must have been up there. I got out of bed this morning very red faced and felt urgh…

It took me hours to sort myself out this morning. I have also been struggling taking my supplements and medications. I am not sure if it is a mental block but I really am off green juice and supps combined. It’s so weird how things change. Only a few weeks ago I really felt that taking my supplements whilst drinking my juice was a great combination. I felt energised and at ease. Now I regurgitate every time I try to take them. Even my reishi powder and oil made me vomit. It’s so unlike me. Thinking about it now is making me get all watery in my mouth. That’s a bit of a pain as its time to have my evening round of meds and juice.

Today I have been organising for going away. I have been trying to get last bits of washing done and cleaning the house so it’s nice for our return. I have also been emailing doctors and organising appointments for when I get back.
I emailed Prof D regarding getting a prescription for mebendazole. He has referred me to another clinic that uses it and says they should be able to sort me out. I contacted them and they say they would be able to help. Yay! But I need to have a consultation and then a follow up appointment costing £400 and £200… Boo!

I feel quite excited about being away. I want to spend some time thinking about the next quarter of our year. I am nearly finished with the health coaching course and I have plans to get in order. I want to have some new goals and feel fired up and ready to go.

One of the lads that did the Colour Run with me at the weekend has made a video. This really cheered me up today… I hope you like it…

I haven’t been able to walk since the Colour Run!

It actually hurt getting up at 5.30am on Saturday morning. But we had arranged to meet everyone from Pete’s business in Witney where the coach would pick us up at 7am.

It was extremely early to be going to the Colour Run in Birmingham but we wanted to ensure that we would be one of the first ones there so we wouldn’t be held up in the huge numbers of people running.

We were actually the first people there! Haha! Right on the starting line, there we all were. We had such great banter all day and mostly stuck together throughout the race. It is no secret that i am rubbish at running at even a 5k race was too much for me! I walked a few times but I still cracked through it in about 40 minutes. It was such fun having powder paint thrown all over you. We all looked a state but had so much fun. After the race there was a mini festival where we all danced and threw paint over each other. We were like a bunch of big kids.

All the while I thought of Leanne….

Donations have been coming in and we would like to thank everyone that has donated so far… We are creeping up to the £20,000 mark. It has been steadily going up over the past two years and we aim to keep going. It all helps, we hope.

I have to admit I haven’t been able to walk properly since the run. Despite exercising daily these muscles are crying out, ‘what have you one?’ Pete thinks it might be time to take up running…Gulp.

The rest of the weekend I felt under par. I had the feeling I was coming down with a cold. You know that sore feeling in the throat and the twitchy feeling in the nose. I must have felt poorly as I left my friends birthday bash early to get home to bed. Even when I woke yesterday Pete said I think you better have an afternoon nap. I looked in the mirror and the state of my under eye bags, i had to agree with hm. He tried to snuffle me up with rugs on the sofa but I just wasn’t having it. I had FOMO; Fear Of Missing Out. Whilst Pete mowed the lawn I wanted to do something too.

I had a lovely weekend and I have to say I feel a lot better. The cold hasn’t taken hold (I’m a poet and I don’t know it! Haha!) and I’m back working today and feeling great.

My vaccination site on my arm erupted quite a bit over the weekend, but at the moment seems to be ok. I am sure it be oozing by tomorrow.

Tomorrow I am back to St George’s for my next round of interleukin 2 injections; round five. I’m not overly looking forward to going through that again but needs must.

Here are some pictures of the Colour Run…

I am so very grateful for the guys taking time out of their weekend to support such great causes and for us. I’m very touched.

 

 

 

Tomorrow we run in memory of Leanne….

I went down to London yesterday to the London Clinic to have the next IMM101 injection. I am getting used to hopping on the train and underground and have it timed to perfection. Yesterday however despite my fine tuned plans I arrived to find that all the trains to London were cancelled.

Oh no… This was due to someone throwing themselves into the path of an oncoming train. How awful. My initial thoughts were how am I going to get to there in time so I hopped on a train to Reading. Once there I noticed a train just about to pull away and it said it was going to Paddington even though it passed through Slough where the poor soul had taken his life. With everything crossed I hoped that I wouldn’t be stood on that train with hundreds of others for hours on end. Thankfully the Universe was listening and we got there with not much delay.

Whilst travelling I spent time thinking about how confused I felt. I felt obviously put out by the disruption this one individual had caused to thousands of people that day. I felt so very sad that he decided that his life wasn’t worth living and what an awful way to end his life. I felt absolutely gutted for the train driver (whom I was told was his birthday yesterday) who had to witness the horrible mess made by a speeding train and then I thought how life is so crazy. Here I am trying desperately to stay alive and well, doing everything in my powers to find a cure or at least something to extend my life.  Then there are those who simply cannot cope with their life and want to end it all in an instant.

I have never understood depression and it has been bought into the spotlight this week with the death of Robin Williams. I don’t think I will ever understand it. I didn’t understand it when my ex boyfriend decided to hang himself and I lived with him for over 6 years.

That’s life I guess…..

Since the injection my arm has as usual gone into an explosive mess. It has reinfected one of the old sites and I currently have huge blisters which will open up and become all pusy again. The price to pay in the quest for wellness.

 

Tomorrow Pete and I along with his colleagues and about 150 other people will be doing the Colour Run in Birmingham in memory of our friend Leanne Muir who passed in June. We are also raising much need funds for our chosen charities; Breakthrough Breast Cancer and The Cancer Vaccine Institute. 5 kilometres may not be that much a challenge and having paint thrown over us does seem fun but every step of the way we will be thinking of a wonderful women whom we miss every day.

If you would like to support us by donating please go to the link below and leave message when you donate.

http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=makingtriplenegativeapositive

 

Thank you in advance and I will post photos of our antics after the weekend.

Happy Friday everyone!