A quick visit to Leipzig

Another night of very disturbed sleep is leaving me with very sore eyes. I have no idea why I feel this way as I should be very relaxed with all this time on my hands but I guess that’s often the way.

We checked out of our hotel in Duderstadt this morning and I attended my appointment at the clinic. Today I had hyperthermia and an injection of Newcastle disease virus.

I was intrigued as always to see the different faces now at the clinic. On my way out I noticed more Portuguese people and one man in a wheel chair with a film crew equipped with a large camera and tripod. I guess they must be making a tv programme on it.

We drove a few hours east to a city called Leipzig. This is half way to our next destination but to break up our journey. We have a few days until my next round of appointments at the clinic. Rather than stay in Duderstadt we have taken the opportunity to take in more of Europe. So far today we have seen where Bach is buried, where Goethe drank and wrote Faust. There is a statue of Goethe and Mephisto. It’s meant to be lucky to stroke Goethes foot. It’s quite a nice place but it’s a good thing we are only here for a day.

I’m going to take this opportunity to try and rest… I’m looking forward to our next stop!

European tour- days one to four

We’ve had a brilliant few days. Driving all over Europe never gets tiring. Not for me anyway! Pete doesn’t seem to mind either. This weekend was spent walking and taking in Amsterdam. It’s not a place I’ve ever really had a desire to go to but I would highly recommend it! Unsurprisingly the red light district and the cannabis coffee shops aren’t why it is so appealing! There is so much to see and do and the coffee shop culture is lovely. Pete did some research and we hunted down many watering holes that had a lot of history from the oldest to the famous frequented by Rembrandt. The only down side to the weekend was the state of our feet! They are very sore despite wearing apparently comfy shoes.

Yesterday we made our way from there to Duderstadt stopping on the way in Munster. Pete lived near Munster as a child so was intrigued to see if he could remember it all. We discovered an authentic German eating house and put a big old smile on Petes face by having a hearty German meal.

This fuelled him up ready for the next leg of our journey to our usual hotel for the next three nights. Knowing Duderstadt as being a very sleepy town we were hugely surprised to find it heaving with people and stalls. Apparently we had missed the Apples and Pears Festival which is an annual event here. We did manage to have a quick scour and take in the atmosphere before ey all packed up as well trying some of the local delicacies and delights!

Arriving at our German home it was such a pleasure when all the staff seemed genuinely pleased to see us. As usual the room is great and we came really prepared with movies on a USB stick. It’s great staying in a hotel but sometimes it is nice to have home comforts so of the next three nights we are able to watch a movie all tucked up in bed with a cup of tea.

We had an early start today with an appointment for both of us to have our bloods taken. They have to test my blood before doing leukerphresis tomorrow to ensure I dont have HIV etc. They did the same for Peter but also took 200mls of his blood as he is providing his gamma delta cells to me.

Now that’s done we have time today to mooch, do some work, write some emails and meditate.

I stupidly forgot my medication dispenser full of my supplements. They are safely with the hotel in Amsterdam. I am having it posted to here… But what an epic fail!I simply keep forgetting things!

I’m having a lovely time and just hope it stays that way.

Back from our exciting European tour…

This is the longest I haven’t blogged before but it has been a busy week. Having friends over last Thursday our little trip and ‘holiday’ started with a lovely meal that evening. Friday morning we had a really early start to the Eurotunnel hoping to hop on an earlier train. Sadly it was ultra busy and we didn’t get to France until about lunch time. We decided this time for our visit to Germany for my treatment that our friends could come too and we could make a little ‘holiday’ out of it. Of course the trip took many hours in the car and I was happy for someone else to be navigating!

We had a day in Brugge where we took a horse and cart ride and climbed hundreds of steps up the clock tower, ate chips and mayonnaise (apparently that’s important in Brugge) and drooled over Belgian chocolate!

The next day we drove to Reims the champagne region in France. Here we went to the Notre Dame cathedral and took a champagne cave tour… oh and drank champagne!

The day after we took a long journey into Germany and stopped in Heidelberg a bustling touristic town and had a break in the sun (albeit fleeting) then we cracked on our way to Duderstadt where we would be for the next few nights. There was a small hiccup as the hotel didn’t have our bookings but luckily they had two rooms for us… phew…

During all of this there was plenty of banter and many laughs. Pete seemed so happy touring around and didn’t once get tired… bless him.  During our visit to Duderstadt we showed our friends around the local town and we made use of the spa… bliss. We travelled to the Harz Mountains, ate German sausage and went back to the river that Pete and I found last August. It seemed different though this time. It was incredibly peaceful with little movement and very little water. Many rocks were exposed so we decided to climb across them and have a little explore. It was here that all the excitement started. I noticed that another part of the river seemed much more energetic than where we were and then I noticed that it had gotten really noisy where were standing.. Thinking nothing much of it we heard someone shout from above but didn’t understand what he said. Then Pete noticed that water was rising and that the channels we had crossed were filling up! Making a dash for it across slippery rocks we made our way back to safety but only just. Pete got a little caught up in it and wanted to save the camera rather than himself! It was exhilarating but scary at the same time! Right before our eyes the river started to fill up. Then the rain came and we got soaked. It was moving being back there again after the year we have had… Pete and I had a cuddle and soaked up the atmosphere of our little special place.

Treatment went well as usual. Dr Nesselhut senior was on vacation so we saw his son Jan this time. He said that since I have been having two injections each time they will run out of my cells and serum to use after my next trip there. Because they hadn’t planned in advance I couldn’t provide any new serum there and then as they needed to do a hepatitis blood test again therefore I have to pay an extra 300 Euros for a donor serum. There are pros to this apparently. It seems by having a donor serum means they have different antibodies which could be very effective when trying to fight infection and of course canSer inside.

I have booked for August as I will now be going Bi monthly. They advised against monthly as this could over stimulate the cells in my body therefore creating canSer and seeing as it is working bi monthly is the way forward then this may be reduced to every three months. They have advised me that I am to provide more cells when I go back in October. This means that I am to have leukapheresis (remove all my white blood cells) all over again. Now I know what to expect I am little nervous! But I have plenty of time before that.

After our two days in Duderstadt we made our long journey back. We stopped off in Brussels the night before last and that should have been a lovely little evening in the city checking out their nightlife. The traffic however had different plans. Our seven hour journey ending up taking eight hours and all of us left feeling very fractious when our sat nav kept changing its mind. Sally Sat nag as I call her let us down… I was actually shaking with stress from it and Pete’s head was going to explode. Luckily for us Pete has a natural homing pigeon programmed into him and found his way round the city despite Sally Sat Nag.

We have driven something like 2000 miles in five days. I felt a bit bad for our friends who were really looking forward to a relaxing time away… I guess it was in many respects… sat in our car driving across Europe! We certainly squeezed a lot into a few days and it was a lot of fun.

I also made the most of our time away by breaking my dietary rules. I ate meat, I ate sweets and cakes and drank alcohol and as fun as it was at the time I feel rough. I did eat plenty of garlic though as mentioned in my previous post. This pleased everyone in the car for the last five days! Ha ha! My tummy has been in a state and I was so pleased to be back on my juice this morning. Yesterday we went shopping and bought a trolley full of veg…. mmmm. Oxygen rich foods that will cleanse my polluted body which has clearly put on weight.

Once we got home we got our lives back in order and Pete is now back at work and I have been back working with my clients. I love normality and I love coming home. Kitty has been ultra affectionate too. Leaving her with Aunty Sarah must be making her feel loved and safe. Normally the cat can be very feisty and weird on our return but she sat with me this morning during meditation, yoga, exercise and whilst I was having my heat and air. Bless her.

I have been feeling mentally a bit weak recently. I am happy and positive but I have been having confused thoughts too. What I want is to be told that I can be canSer free. I know it shouldn’t matter if it’s said to me or not as it’s up to me to keep that thought process but I guess I feel a bit beaten at times when doctors simply say that once canSer has spread from its primary site to other parts of the body it is incurable. I just find it hard to believe. I have read so many stories of those that have done just that; had incurable canSer and no longer have any sign of it in their bodies. I don’t know why it’s bothering me now though. I want to feel that I have a future and can plan my life for many many years…. I know it doesn’t matter as no one knows what tomorrow may bring but for all those with children you plan your life to bring them up and give them the best life you can. You never imagine that you may not be there for them one day. Life isn’t like that. I want to be living for 40, 50 more years well and happy. Its pointless thoughts but never the less I am not in the position that I was two years ago when I had the chance at being fully canSer free…supposedly.

It makes for planning your life and what you want from it so hard. Everyone rests easily or in ignorance that they will have their retirement plan and wherever they want to be all planned out. Most of the time I am like that now but I feel the nagging knowledge that at my next scan everything could be different. Pete just says to enjoy now and not think about anything else but my life has always been about the next thing otherwise what do you do you every day? What’s the point of working and doing courses if you live day to day? I think I need to work on my head and what really makes me happy. Maybe I am forgetting to be thankful and grateful and just really happy to be alive and well right now. I get a bit lost not having any major plans. And always being good and thinking about my diet and making sure I exercise although being really good for me sometimes I just want to forget it all. Just for a fleeting moment. What I need to do is actually just forget that I have a chronic disease. It’s by someone telling me that I have it that I know about it. Ignorance is bliss and it would be so good to not know….sometimes…… I need to read some positive books. Hey ho…..

I have had the loveliest clients in today. They have all given me such a big kiss and cuddle. I feel very loved. It makes everyhting semm worthwhile.I can’t wait for my Bear to come home. More cuddles. X

 

Auf weidersehen, adieu Europe!

We had a great morning in Brugge. It really is a beautiful cool little place with all the swans an’ that. 🙂 My arm is a little swollen from the vaccination yesterday but nothing to worry about.

I have been really pleased with myself this time we have been away. I have stuck to my diet and I can only feel and see positive effects of being vegan. I don’t experience stomach upsets or headaches. I have more energy and brighter eyes and my skin is much better. As an aside it’s great for weightloss. But that’s the least of my worries. I havent’ taken any pain relief for anything on over a month.  Pete asked if the big changes in my diet make me happy or not? I’ve always wanted to be ‘better’. Plus I’ve always known that deep down I shouldn’t be eating and drinking certain things but never had the will power to change it before. So yes I am happy. I’m not saying that this is for everyone in my position. It has to be what feels right for you and your body at that particular time. For me vegan (with a bit of fish every now and then) is the right decision however that’s not to say at occasions I won’t eat whats offered and certainly will indulge in some little drinks or two. I ‘m betting our friends who are getting married soon are sighing with relief. 🙂

I just wanted to thank everyone that has messaged, emailed, written, sent cards, letters and more. The support that we have been getting is overwhelming. In the beginning we cried but now we just feel stronger and more determined.

On our way back to the Good ol’ Grand Bretagne now so I’ll say so long, fairwell, auf weidersehen, adieu! Returning to my kitty kat who will no doubt give me the cold shoulder for days! ha ha!