The Venetian Masquerade Ball was a huuuge success!

I’ve been a bit lazy these last few days. I’ve been meaning to write and give an update but the weekend was manic to a degree and as usual I needed to catch up on things.
The big highlight of the weekend and well I guess for the end of this year was the Venetian Masquerade Charity Ball that my friends suggested to raise money for our favourite charities; Breakthrough Breast Cancer and The Cancer Vaccine Institute.

Pete and I had quite a lot of input and helped out quite a bit by obtaining auction prizes and selling tickets and so on, so we felt quite nervous and hoped it would raise lots of money. Of course as a typical women, the other big thing was what to wear… Argh! For me I hoped that I would have hair but of course that wasn’t to be so my thoughts were, do I go bald or wear a wig or…?

The ball was being held at Caswell House, and the food and drinks and everything supplied from lighting, to the fun photo booth, to the dj, band, photographer and table centre pieces and everything were donated or provided at cost! My friends even paid for an additional photographer for me as a surprise! (Thank you ladies!)
As yet I haven’t seen any official photos but there are lots of snaps from friends…

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We arrived to a wonderful champagne reception with everyone fully glammed up and wearing masks.. I arrived in a red dress, red shoes, red and gold feathery mask and… A red sparkly bob wig! It was funny because some people didn’t recognise me! For me it was a big thing.. I didn’t want to look silly but thought it was a great opportunity to really be a bit extreme…

I have to say everyone excelled themselves. Every single man and woman looked awesome, so dapper and beautiful.

I simply cannot believe how quickly the night went. We arrived at 7.30pm and left at 1am! I wasn’t ready to leave! The food was simply divine, the auctioneer/MC was so funny and handled the night brilliantly.

A highlight of the night was how much the auction prizes went for! I cannot believe the generosity of everyone and it was so exciting!

The stand out moment was Pete’s speech..Everyone was left teary eyed and it really focused our minds as to why we were there. I couldn’t look at him for fear of really blubbing and ruining my make up! I think his message got home though. His main point was how much love there was in the room… The circle of love. I really believe that everyone felt it.

On the night I was being updated as to how much we were making.. I couldn’t believe that £2000 was made on raffle tickets alone! My numbers were called out.. I won a lovely Christmas wreath.. It’s on my front door now.

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Yesterday I got an email from Kate at Caswell House to say after all costs that the total raised was £20,560.00! Oh my goodness!!!!!! This is an outstanding amount to have raised..

I want to thank everyone who came, who donated, who supplied and contributed in every way. I know the money doesn’t directly help me but I hope that it helps so many ladies and their families and I hope that they will never be in my shoes… Bring on a cure.. Please.

The following morning we headed over to Witney to see our friends and my mum for breakfast then I think we all started to feel very jaded. Pete and I and our lovely friends Alex and Lee spent the afternoon watching rugby and eating! We chilled and laughed and generally felt very grateful. Sunday was very much the same for us when our friends went home. It may seem like we spend a lot of time doing very little but that’s exactly what we need sometimes… It’s so nice to wind down and be wrapped up in a soft blanket and have my feet rubbed by my Bear… I love him so much.

This week has been going well. I have nothing much booked in so it’s brilliant. I have been getting admin done, doing my daily rituals and really trying to get on a roll.
I’ve been exercising, doing yoga and eating very well. I still look very pale and have very puffy eyes. Nothing a bit of make up won’t cure or a holiday….. He he… Which we have booked!

In true Pete fashion, he said that we have to keep living like we normally do. So despite having to travel abroad and go to hospital we should still book our trips away like we always do. We didn’t want to hang around over the new year holiday period so have booked to go to warmer climes and get some vitamin d and bliss out. I was a bit
nervous booking a holiday but now I have done it I’m really excited! Whoop!

I have had confirmation from St Barts that they finally received my tumour sample and they have sent it to be tested. Hopefully this Friday or next Monday I should know if I’m eligible for the trial… Watch this space.
I have also had confirmation from the Churchill hospital in Oxford that I have an MRI and CT scan booked for next week, so the results should be with Prof Harris the following week when I see him. So that’s good, I will at least know in detail what is going on and if the radiotherapy has worked. I have everything crossed. I have to say I feel better in myself. Still no cough, no headaches and now no shaking. That’s got to be good news?!

I am definitely getting in the Christmas spirit. I have been doing all my shopping online…Sorry Mr Postman! This weekend I am going to drag Pete to buy a Christmas tree and then we can have our ritual of singing Christmas carols around the advent candle…. Bring on the mulled wine and sparkly lights! I have started writing our Christmas cards and I have drawn some Christmassy pictures… He he… All in all this is a lovely week.

Bear and I are getting lots of sleep, eating really well and generally looking forward and loving to the max! We are spreading the love and feeling the love from all our friends and supporters… #circleoflove

Tomorrow I am being picked up by my sister, then spending a few days with my mum! We are going to finish the Christmas shopping and I get to be spoiled down in lovely Dorset by my mum….
Fun packed, love filled and generally looking forward to what’s coming next…

A massive light and love… XX

I would like to officially thank the following for their contributions and donations to making the charity ball a massive success;

My good friend Samantha, one of the Kitty’s Climbers, who thought this idea up and grafted over the last 6 months,
To Kate and Steph at Caswell House for all your hard work and making it happen so smoothly.
To Amanda and Richard for letting us host the ball at your stunning venue.. Caswell House is gorgeous and I can’t wait to be there again sometime!
To Jason and Nick from the Es Vive Hotel and Chic Villas in Ibiza for your generous auction prizes.
To Ivan and Harvey Nichols London for donating a wonderful cocktail masterclass
To the anonymous person who donated a signed arsenal shirt
To Nilam Patel for donating a spa day at her Dermaspa
To Marianna and Francesca at Soru Jewellery for donating the stunning rose quartz necklace
To Sarah Pooler and Ocean Beach Club Ibiza for donating a day/bed with cocktails

To all those who donated prizes they are featured on the ball programme attached…

Thank you to you all! You’re all amazing!

X

A mad week ahead starting with day one of treatment in Germany…

I have a bit of a mad week ahead of me. Yesterday we arrived in Germany and today I have treatments including zometa and il2. We get back home late Tuesday night. Wednesday I have to skoot to the hospital to have my blood test then back home to get some work done.

I have received a letter from Dr Gonsalves, the radiologist who will be perfoming the ablation and I am booked for clinic at 9am on Thursday in South London. That’s another 5am start. I get to discuss everything to do with the forthcoming surgery in June.

Friday I am back to London for my next vaccine on the trial Professor Dalgliesh has put me on using heat killed mycobacterium.  The last vaccine has been fine. My arm looks like it has a very big insect bite on it. Nasty but nothing I can’t live with.

Amongst all this I need to work and study for my health coaching course.

Life is just hectic sometimes and to top it I have social engagements. (I’m not complaining! Life is rich!) Getting the most out of life.

 

The good thing is that I have a plan. The 19th June all of a sudden doesn’t seem that far away. I am pleased I get to celebrate my birthday the weekend before going into hospital. I am very nervous but will give more details on the ablation once I have been to the appointment on Thursday.

 

The next few weeks it’s seems that things are just rammed in our diaries. There has been too much eating and drinking recently and I’d really like to feel cleansed.

I have put on half a stone. I immediately feel anxious about it as I have felt great with my ‘new’ weight these past two years but as Pete keeps pointing out, there is more of me to fight the disease. I know he is right. It still wouldn’t hurt to eat more consciously. It’s easy to digress from the plan sometimes but with no regrets you resort to going straight back on the straight and narrow.

 

I have already had today’s treatment. I had local hyperthermia, inhaled air from the airnergy machine, had an infusion of zometa an injection of il2 intradermally and Newcastle disease virus intravenously. I feel fine as usual. I got the thumbs up to go swimming and use the sauna etc.. Yay!

 

I’m back at the hotel now where Pete is trying to work on his iPad using the wifi and I am enjoying another cup of green tea.

 

I have just looked through the notes on my iPad and found the excerpt below from September 2012. Nothing has changed and it still sums up what I want from life;

 

My Goal

To outlive the life expectancy.

To stop the progression of cancer.

To actually go into remission and kill cancer.

To live each day being thankful and full of compassion and love.

To help other survivors to be able to have dc treatment.

To brighten others lives by sharing my knowledge and passion for a less acidic lifestyle.

To have acceptance of life and what it may or may not bring.

 

What are your goals?

 

Love, light and more love.

Xx