Squeezing everything out of life….

I am so sorry for the lack of blog since my last one, which was quite an exciting one! I have been ultra busy since then.

Last Wednesday I went to London to collect more interleukin two injections and also had a quick chat with Professor Dalgliesh. He seemed very excited when I told him that Professor Harris had supported his work and said that he feels I should continue with his treatment. Professor Dalgliesh said he really respected Professor Harris. He wishes that it was the same for the doctors at the Royal Marsden. It seems crazy that all cancer doctors aren’t all supporting each other. This is why we are no further forward with a cure or a vaccine.

I started having the injections that evening and finished Friday evening. As before, I had fevers and very disrupted  sleep. I eased the pain and fever with paracetemol but it seems to have quite a bad effect on my stomach now too. I get stomach aches when having my green juice and supplements in the morning and over the weekend I even felt nauseas for a while. Pete says it seems to affect me worse than chemo did. I felt ill over the weekend, generally under par, emotional and grotty. I even went to bed last night feeling achy and off. I had diarrhoea for most of yesterday too.

I actually forget that I have been having the injections and start wondering what can be making me feel rough. But then I think back to the last round of injections and remember feeling pretty rough for that weekend too. I think maybe it is an accumulation of it. The lumps where I inject in my tummy are still raised and itchy. I hope they go away soon.

Thursday was an exciting day for me too. I hopped on a train to London yet again, this time to meet my friend who arrived from Ireland for a few days and to go to a photo shoot. Breakthrough Breast Cancer had contacted me and asked if I wanted to take part in a magazine feature. Prima Magazine as part of October Breast cancer Awareness Month wanted to tell the stories of five breast canSer survivors, me included. I arrived at a cool studio in East London and was greeted by Jo from the magazine and the photographer. There was lots going on with the other ladies choosing clothes and being made up behind a screen. I have to admit I had thought on the way there, ‘Why did I agree to this?’ As usual my nerves were kicking in and I am not great in front of a camera. My cheeks twitch and I feel a bit like Chandler from Friends in the episode where he has his photo taken with Monica celebrating their engagement. I knew it was going to be fun and it’s so lovely to be asked and to think that people may want to read about me.

I was shown a rail of clothing and met the stylist and her assistant, who said I looked trendy and that she hadn’t bought anything along for someone so trendy. That was really sweet of her. I did find something I wouldn’t normally wear but all the other ladies were wearing bright clothes so I decided to join in. Being made up was very relaxing (I especially liked the eyelash extensions. I looked like a cat from a Disney movie!) and talking to the other ladies was so interesting. We had so much to share about our own stories and they have all overcome so much.  The ages started from 34. Many of the ladies there are part of other campaigns for other charities such as the Look Good, Feel Good campaign and the Breast Cancer Care fashion show later this year at the Grosvenor Hotel. They are all so confident and brave and I thought they all seemed to love life. We discussed juicing and diets along with our experiences with chemotherapy. I was the only one there with secondary canSer I believe. I discussed with the stylist who is also a survivor, the treatments that I am currently undergoing. Everyone I spoke to seemed in awe and didn’t really know anything about the treatments such as immunotherapy.

When we finished there my friend and I hopped on the tube and met Peter and his colleagues who had been working in London all day for a cheeky little drink before our journey home.

Friday I spent with my friend showing her around Oxfordshire and having a lazy lunch and did a spot of shopping. Back home, I did her a shellac manicure, HD brows and teeth whitening. She was well and truly pampered. I loved making people feel happy. That evening we went out for drinks and a meal. All throughout these days I was trying to ignore the side effects of the injections. To be honest I struggled at times.

The weekend flew by and by yesterday I felt a mess. I wanted to do so much but I really needed to chill out. Pete looked after me as usual by rugging me up on the sofa and Kitty even joined me for Sunday afternoon cuddles. The first time in months.

Throughout this I have been trying to keep up to date with emails and have been contacting Dr Hembry in Bristol. I have enquired about having some infusions. I don’t want to become complacent with the treatment I am having and I believe keeping canSer on its toes is essential. The infusions I requested are; artemesinin, NaBic, B17 and salicinium. This is because my RGCC blood test showed I would be responsive to these. Sadly Dr Hembry can only help with one of them so has given me details of a doctor in London who I have today emailed. He has already replied and said he can help with salicinium and artemesinin. I have to get consent from my gp or consultant before proceeding but in the mean time I will get more information and the costs for it.

Today I am back to my usual rituals and I slept pretty well (I love fresh bed covers!). I did wake for a while, worrying about stupid things, not health related. It’s unlike me but apart from that I feel much better today. My stomach is aching less and I feel much brighter, so much so I could exercise this morning.

There is so much coming up in the next few months I think I am feeling a bit overwhelmed. Silly me. Letting my head take over again. I must take a deep breath and take it all in and enjoy life.

Here are some snaps of the photo shoot. I will be featured in Octobers’ issue of the Prima magazine which is out in September.

 

 

The lovely ladies organising the day….
Styling us…
A quick snap of a four of us….
A sneaky peek of the computer…..
Modelling skills come naturally to us…