A dreaded phone call from the secretary….

I have been feeling really good the last few days. I feel like a different person compared to the one I was last week. The only thing I can put it down to is the injections of il2 and maybe combined with the IMM101, because who knows what that is doing to me?!

My day was bumbling along nicely when I got a call from a secretary at the hospital, here in Oxford. I hadn’t emailed asking for my scan results in the last two days because I thought they would get there in the end. The secretary said that unfortunately Professor Harris, my oncologist, has decided he thinks it is best that I receive my results in person on this occasion- In a week’s time. Oh god…. I felt sick. Adrenalin pumping around my body, then I started shaking. I said to the secretary, ‘But surely he does realise that I will feel absolutely awful for the next week?’ She said her hands were tied. I tried to probe her by saying, ‘I take it the results aren’t good then?’ She said ’I don’t understand the results and what they mean so I cannot pass comment.’ OK, I reluctantly wrote down the time and day that Prof wants to see me, next Tuesday. I asked if the Prof could at least call Pete and talk him through the results today. This would give us time to digest the information before we see him next week?  She said she would ask him then call back.

All in a flap I emailed Pete the title saying, Oh God… I then got a call back saying that due to the trust policy Professor Harris was unable to call and discuss my results. These are MY results aren’t they? Not in the mood for arguing or causing more aggro than necessary I just agreed that next Tuesday would be D Day then.

I got a reply from Pete saying quite bluntly. ‘The results won’t be all bad Kitty.’ The radiologist only has my last scan to compare it to. They have no idea that I have ablation because that was done somewhere else. I have small lumps all over my tummy from the il2 injections; not sure what they would look like on a CT scan and so on… He’s got a point. He said ‘This battle is far from over and we have so much to fight it with yet.’ So matter of fact and well.. normal. He’s brilliant.

Actually by the time I read his email I had calmed myself down quite a bit. I thought to myself it could be anything. It could simply be that the tumours that were there have grown. My mind initially was thinking that there were lots of new tumours, in new locations… You know the worst. But I have to keep reminding myself that despite the niggly feelings of illness I don’t have any symptoms still. Surely this is a good sign?

I refuse to let my 60,000 thoughts a day go on worrying about what might be. I am not using my imagination on worry. So when Pete came home we had a big cuddle and continued on as normal. I have to admit it was on my mind a bit but I didn’t express it much.
Ironically I slept like a log! The deepest sleep I have had in a while now! Go figure? I simply don’t understand the patterns I go through. Weirdly enough whilst lying in bed before I fell asleep last night I had the urge to public speak. I hate standing up in front of people and talking. In fact I would call it a phobia. I blush and feel terrible. I must be having a mid life crisis or something!



Today I have decided to revisit a few things that have popped up recently and I always think when they keep coming forth then it is worth investigating again.

Mebendazole is a worming medication. Usually children who get worms take this form of simple medication. I was kindly offered this information by a virtual friend who has got my back, (Thanks Daniel) and I also heard from Pete Trayhurn (Another canSer go-getter) that he is also taking it.

Mebendazole apparently combined with cimetedin which I already take should be goer, straight away. On that basis I think I will get myself some ASAP. What harm can it do? Stop me from having worms? Ha ha!

Here is a short explanation as to why mebendazole is useful for canSer treatment that I took from the information on this link;


‘If you have ever cared for young children then you are probably familiar with this medicine under the name of Vermox, Ovex, Antiox, and Pripsen. It is usually prescribed to treat pinworms, roundworms, whip worms and hookworms — organisms that find an unwelcome home in our intestines. For some time now, scientists have known how it works, but the method of death meted out to the targeted parasites was of little interest to them. But that has since changed.

How it works…

This next part gets a little technical. I’ll try to explain things in a general way. I’m by no means a scientist or biologists but I’ll share with you what I have learned.

One of the misconceptions that people have about a cell is that it contains a nucleus, a cell wall and everything inside (cytoplasm) kind of sloshes around in a liquid or gel. In fact, the inside of a cell contains a kind of scaffold made of micro-tubules, also called spindles that have the ability to assemble and disassemble quickly. This network of rigid micro-tubules inside the cell gives it shape, structure and also has the ability to transfer organelles and various molecules to different parts within the cell, functioning like a railway system. But its most vital function is cell division.

Mebendazole is known to interfere and inhibit the assembly of the spindles, thus preventing the ability of the cells to divide. The cell eventually dies of old age or aptosis. Mebendazole is highly selective and somehow targets only cancerous cells (as well as a host of intestinal parasites). At the end of this article I will post a few of the many scientific papers acknowledging these facts.

You will also see why there is virtually no pharmaceutical interest in mebendazole. The big pharmaceutical companies are promoting more toxic chemotherapy drugs because there is no profit margin in mebendazole. It’s yet another example of corporate profit outweighing human benefits.’

To read the full article click on the link above.

There are a few other things that I have listed that are also looking very beneficial. Once I have done the research I will share the information on here. Watch this space….