Today has been another lovely day. Another filled with great TV, The Great British bake off being one of them. It makes me laugh that under no circumstances can I eat the bakes but I do love to watch them create! Another lengthy night’s sleep and the reluctance to live my wonderful bed but it has been another good day. My days do not have to be filled with experiences for them to be good. I simply like to potter. Prepare meals, organise bits and bobs, clean the house and sort through photographs as well as clients tucked in between.
I have been replying to a few forums offering my advice and experience to other triple negative survivors and have come across a doctor whom I have heard a lot of recently. His name is Prof Dr Vogl. Another German doctor who has a clinic in Hallwang near Frankfurt. He specialises in radiology in particular transarterial chemoperfusion or TPCE. I know sounds ‘out there’ right?
The long and short of it is this; It is where under local anaesthetic catheters are passed into the tumour, in my case, my lungs and a large dose of chemotherapy can be applied directly into the tumours. It is apparently far more effective than giving the whole body chemotherapy because you can a0 use a much higher dose as it is localised and b0 it doesn’t leave bad side effects and c0 can be done as an outpatient. Also he can stop the flow of blood to the tumours therefore making them die. Of course this isn’t a cure for canSer but can obviously elongate a patient’s life. I thought to myself it was worth investigating and found an email address to the Prof. So I emailed him. And within an hour I had a reply with him explaining that he could offer me the treatment depending on my CT scans. Well, well, well… this does give me options. I am intrigued and following my next Germany visit if my CT scan doesn’t look as I had hoped then I think I will send him a copy and see what his thoughts are.
So another option… it; s always good to have more options… Germany seems to be rocking great treatment.
I saw this inspiring article online earlier today that I thought I would share with you…
15 wildly successful people who overcame huge obstacles to there. Kris Carr is one of them J
Another busy working day yesterday but this week has felt really good. I feel quite evenly balanced and everything has been flowing. I have been looking on a website featuring women who have metastatic breast canSer recommended to me by a friend. It has real life stories on there about women who are still living with canSer ten years on once it has spread to other parts of their bodies. It initially gave me hope but then it dawned on me that I could live with this for the rest of my life. I am working hard in myself that I will beat this, that I will be a miracle and one day be told there is no sign of disease. But reading the life stories the women on there are all still taking medication and having to change every time something changes or doesn’t work anymore. That fills me with dread. There was one story of a woman who has lived with canSer for thirty years. Amazing but she felt terrible for much of it due to the chemo. That’s not a good quality of life really. Then at the end of her story there was note saying that she had died recently. Well she was in her late seventies.
I don’t know why this is a revelation to me all of a sudden. I suppose I live in this bubble where I believe I am going to be like Ian Gawler or some of those other amazing stories and survivors.
Any way it brings it all back to not worrying about the future as you never know what is going to happen anyway. No point wasting time and energy on those thoughts. It just caught me out a bit that’s all. I envisage me being told one day that I can stop taking chemo but it looks unlikely as long as I choose to listen to listen to the oncologists. And let’s face it they know enough about it to know what I should be doing.
Maybe I am living in denial. I feel so well I find it hard to believe that I actually have an illness at all. Living with incurable cancer is hard to get your head round at the best of times. I thought I would feel inspired by long term survivor’s stories but actually I take more comfort reading about rare cases of when the disease has gone altogether and the individual lives on for many years.
I keep telling myself I am doing quite unusual things that others are not which could make all the difference. I know that we all have to die eventually and I know there is nothing to worry about but when I read online of people having their 54th wedding anniversary it saddens me to think that I may never get to be old enough to do that. What an amazing length of time to be with the one you love. Till death us do part. Sad really… I’m selfish but I don’t want to go!
Today I’m going for reflexology… can’t wait and I have packed already for the weekend by the beach. Off to Brighton to hopefully enjoy more of the same sunny weather. Yay!
We are back from the White Isle. It was sad to leave our lovely friends from the hotel as well as our new friends we had met this week. But I am always happy to come home. On arriving home we had a huge pile of post and emails to get through. I was delighted by a letter I received from a lady that had read about me in the Oxford Times Limited Edition magazine. She had seen a newspaper article of a canSer survivor that had got the ‘all clear’ from incurable cancer just by changing his diet. What was great was that the things he has mentioned he took are things I have been taking too; such as selenium, vitamin c, barley grass, and curcumin as well as eliminating meats and all dairy from his diet. This really lifted my spirits and just urges me to keep going too and confirms that I am doing the right thing. This was then doubly reinforced when a friend emailed me the link to the same article.
Then as the evening progressed some wonderful friends who are on holiday in America sent a message to say they were actually speaking to a scientist or researcher that works a laboratory there where they say they have found a cure for breast cancer!! Well, I have spent a bit of time today already looking up the laboratory and I am waiting for a reply to my email with hopefully news on how soon it will be available. What’s really interesting is that it sounds like it is all to do with stem cells not drugs. This again reinforces the treatment I am already having in Germany. Once I have more information I will share this news with you.
As well as this my friend sent me a link with news that is in the Daily mail today with findings from a research centre in California whereby they are using the small pox virus otherwise known as the vaccinia virus may help treat triple negative breast cancer. On tests on mice the virus is actually reducing and kiilnig the canSer cells. it’s still early days but once again funny how it’s a vaccine not drugs?!
If you would like to read the article here is the link: http://www.dailymail.co.uk/health/article-2211631/Smallpox-virus-help-treat-deadly-form-breast-cancer.html
It’s crazy to think that it has only been three months to the day almost, that I was told that I have ‘incurable’ canSer. I find it very hard to be told that something cannot be cured and that they can indeed tell me how long I am expected to live. All the news though gives hope and really does make me wonder why it has taken so long. For now I am going to keep improving what I am doing and have today contacted a naturopath friend to get advice on my diet and supplements. As a well known supermaket says, ‘Every little helps!’.
Regarding the diet I (and Pete-although reluctantly at first!) have adopted was inspired by Kris Carr, a writer and canSer survivor. She is just releasing a new book full of recipes called Crazy Sexy Kitchen. I have mine on pre order and it will be released at the end of October. If you want to prevent canSer or just want to feel healthy I would highly recommend buying it. It’s already in the top 100 books on Amazon this month.
Can’t wait for my meal tonight. We are having chinese stir fry full of greens. MMMM. 🙂