I have been at mums for a few days and as usual I never want to leave. There is nothing like being in your parents’ company. Well looked after and always cosy. I love her home and all her bits and pieces lying around. Properly comfortable and lived in.
I still managed to DO my rituals and mum joined me in meditation and yoga. These things are catching. Once one gets on the band wagon everyone seems to get on board. It’s infectious. I take it all as a compliment. I must be looking well if people want to emulate it.
We managed to do lots of my ten point plan mainly physical, mental, and nutritional but helping me with my self esteem we had to do some retail therapy… again! Sorry Pete! I am very excited with my purchases. I have discovered through the last few years but mostly the last nine months that I look quite quirky and my old fashioned hairdo has been replaced with an odd funky one. I like the new me. I feel comfortable in baggy harem style jeans but when I get the choice dressing up glam is so totally exciting. I love clothes… (Everyone knows this especially as I constantly have clear outs as my poor wardrobes heave) I must do some kind of charity drive with regards to my clothes. I must get my thinking cap on.
As mum did all the driving over the last few days I got to check email and I have been receiving a few lovely emails from people that have found my blog and website. One lady called Leticia Croft Holguin who lives in the USA contacted me and told me her story. She has a blog and a book in the US. She found she had triple negative breast canSer when was pregnant. I couldn’t even comprehend this. But overcoming hardship she’s thriving today and has written a book to help children understand canSer. It’s called Cancer starts with a C and is illustrated too. What a great idea?! Here is a link to her book;
Then I got another email titled ‘Soul Sisters’ from a lovely lady who lives here in the UK. We are of similar age and our stories are almost identical in when we found canSer and had treatment etc. The difference with this wonderful lady is that she luckily took matters into her own hands when it was found the second time and had a mastectomy and then embarked on alternative and complementary treatments. The canSer has not metastasised thankfully but she has still gone and had dendritic cell therapy with the one and only Dr Nesselhut in Duderstadt! Oh my! I was so taken back and absolutely thrilled. It reinforces what I am doing and gives me more hope for the future. Since this she has also changed her life for the better. She has introduced a more spiritual way of life along with nutritional changes including supplements and so on. Wow. I knew what was working for me couldn’t be a one off. What I felt most encouraged by was how she said that when she read my blogs that it was as if she had written it. The thoughts, feelings and ups and downs were the same as how she feels. I love this. This spurs me on and makes me realise there must be others like us. I feel this whole sisterhood is materialising and that together we can shout our small victories from the roof tops! I am getting all over excited.
Any way back to reality and things are great. I am back home where I belong and my kitty is happy sitting by my side and my Bear is coming home to give me a cuddle as ‘I’ must need them..Ha-ha! Bless him. No shame in needing cuddles. You know nothing can get me down. All this talk (or moaning I should say) about the dreary weather. But is it worth moaning about? Yep, I agree it’s not great and as reminded by mum this time last year we were sunbathing in her back garden but that’s life. Everything is different. I would much rather be living in a climate like Ibiza but we don’t we live here in good old blighty. We have to make the most of what we have got and be thankful that things aren’t worse. That’s the biggest lesson I have learnt since I ‘woke up’ and realised that life was going to be taken from me if I didn’t start living, is gratitude. Gratitude makes you happy. It’s impossible not be happy when you are grateful. Immediately a smile creeps across your face and you feel calm. If I were in a Disney animation birds would be singing, rabbits hopping, and I would be singing at the top of my lungs and cracking windows! Ha-ha! Life is brilliant if you can see the good things out there. Like I have said a million times… ‘No one said it was going to be easy’. But to add on that saying, but boy it could be fun and filled with love and gratitude. Happy thoughts and feelings. Long may they continue.
I’m off to wait by the front door like an excited puppy for my One to come home. J
Started our day at the Churchill Hospital. If I’m honest I was dreading it as my experiences of late there hadn’t been altogether positive. The appointment was meant to be getting my results (but I had already been given them) and to see what the next route to take regarding chemotherapy should be.
We were greeted by Professor Harris. Oh how I have missed him. He is such a great specialist. We discussed the fact the canser has gotten bigger and is indeed affecting nodes. But he did say they are still extremely small and I am not experiencing any symptoms. He explained that as the growth in the time of my first scan to my last there had been more than a 25% growth that I really should have treatment. It was then that we mentioned the immunotherapy. He was very encouraging. Agreeing with Professor Dalgliesh, he said as I am feeling well doing trials and new treatments are a great way to go, HOWEVER, if by the next scan there has still been a further 25% growth then I should stop that trial/treatment and progress with laboratory tested, scientifically proven systemic treatment i.e.Chemotherapy. So there we go.. 6 weeks time I have another CT scan and 8 weeks I see Professor Harris again.
We discussed diet and supplements with Prof Harris as well as exercise. This time I wasn’t met with eat and drink what you like. He said he couldn’t really give nutrition advice but also didn’t pooh-pooh it either. He said definitely exercise will help. This was such a positive experience. He was firm in his decisions, certain of the next step and really reassured that the disease could be contained and treated but not cured. We mentioned that we had seen some research in Australia at the Garvin institute regarding a trial on something called the ‘Hedgehog’. Professor Harris is so very cool.. and said he assists in research with them!
Peter mentioned the fear I have been feeling especially with the time scales and life expectancy. The prof said the view I had been given was very pessimistic and been given as an average. Weirdly enough that was enough to make me feel better.
The prof mentioned that he was going to send to me for trials with Professor Tutt in London at Kings College Hospital. Now that’s a name we had both heard before. On looking him up it’s clear that he’s a boy to see too! He specialises in breast cancer, chemotherapy and radiotherapy. So maybe if required we will be seeing Professor Tutt at some stage.
We left both feeling uplifted. Unusual as we hadn’t really been told anything huge. It was just the way it was handled. I have complete faith in Professor Harris’ decisions and he seems so assertive. I really like the fact he knew about other treatments and was very open to having them and any route we wish to take. He reinforces the ‘ten point plan’.
At least for now I know I have to keep doing what I’m doing, hope that the immunotherapy really starts working and that maybe I won’t need any more treatment for a while. I still have everything crossed that I will be a miracle. For now I have to enjoy feeling well.
My lovely mummy is here with me this week. It’s great to see her and have some girly chatter, oh and get my ironing done for me! Thanks Mum! (She offered- I’m not a slave driver you know! Ha ha!) Off now for a big ol’ portion of lunch. Can’t wait for my evening meal either. Another exciting creation no doubt coming my way. Honestly I can’t get enough. 🙂
This weekend has been great. Apart from having a long weekend as its bank holiday it really has given Pete and I time to catch up with friends, relax and breath in fresh air.
Following on from my meeting with Dr Kate James she sent me lots of information with regards to certain elements of the diet and other factors she takes into account. Of course the alkaline diet plays a huge role but she also takes into account traditional chinese medicine and their role in the foods consumed too. Yin and yang is well known to us all but I had never considered how yin and yang foods can affect us too. Yin food characteristics can be seen as cold and cooling and yang are warm in colour and comforting, for example. Apparently building the Yin is particularly important when trying to create a balanced and healthy environment. This can be done by foods and by what we do.
What I found to be really interesting was reading how to nurture our Yin; being by the sea and water, enjoying a quiet retreat, taking a quiet walk in nature. I have really been enjoying spending time by the river in Germany and this weekend we went for a long walk in the New Forest which I really loved (Pete might think I didn’t enjoy this much as after 90 minutes of walking I started to moan quite a bit! :)). I think it’s like being a child again. It might also explain why Pete sleeps so well on our boat. The energy is so relaxing.
Its funny (haha not peculiar)how so many things are decided and happen so intuitively. Having not known any of the facts about Yin we both have been having instincts of wanting to be closer to the coast and to the woods and outdoors. Of course the other obvious factor is exercise and fresh air perfect for my lungs and for oxygentating my body which is the key here.
The key to my whole life and the plan moving forward is the ten point plan. That reinforces the need to make it as hard as possible for canser to live inside my body. Let’s hope its working.