One small one still in there…..

Monday morning I had a call from Liz the CNS at St Barts. She said that they had checked out my images and that they can confirm there is a small tumour that requires blasting. She then paused…. I told her I wasn’t surprised because I saw Doc Plowman on Friday and he suspected something […]

Learn the art of patience…..

‘Learn the art of patience. Apply discipline to your thoughts when they become anxious over the outcome of a goal. Impatience breeds anxiety, fear, discouragement and failure. Patience creates confidence, decisiveness, and a rational outlook, which eventually leads to success.’ I have been trying so very hard to be patient. But last week I thought […]

New beginnings…..

I’m sat in my room at the Zum Lowen in Duderstadt. We are once again living life to the full after a weekend being joined by our good friends from Ireland. Feeling tired but happy we got here late last night. We flew to Hannover and then drove to Duderstadt. We are so unlucky with […]

PDL1 negative….

The weekend is looking exciting with German Christmas markets to enjoy. The only issue is a storm heading in to cologne.. Boo… I have received confimration from St Barts that my tumour sample does not express the protein for pdl1, however they are still interested in me going to see them next Thursday as I […]

Results.. the quick version or the long?

 Today was the day that was looming. Despite being calm and brave I did feel sick to my stomach again getting ready for the hospital. I simply can’t help it. Pete was the same although he probably wouldn’t admit it. Prof Harris was on form as usual and asked about my henna head and seemed […]

It keeps life exciting, eh?

I honestly don’t know where the time goes. I was thinking the day before we left the villa that I was going to leave a lovely parting message and my thoughts on the three weeks that had passed. But before I knew it we were on the road travelling hundreds of miles to get back […]

It’s all about the money…

I have been having such a lovely week. Slowly clawing my life back together again, I think. I have exercised these past few days and boy do I feel it. I mean, I am doing light exercise; 20 minutes of yoga and then some boxercise. I am aching all over! I didn’t realise how unfit […]

Hair No More… Third Time Lucky….

Monday already! The weekend was good… I went to watch England play rugby with my Bear and two of our friends. It was full of banter and laughter. Just what we both needed after a challenging week. To honest I didn’t think I would be well enough as I felt pretty rubbish Friday. I suppose […]