Didn’t really sleep last night mainly due to worrying about waking up early this morning. Why do we do that to ourselves? I got on the road to Tooting ultra early mainly because I know how long it took Pete to get there last week when he was visiting me.
I arrived by 8am and my appointment wasn’t until 10am. I guessed ghee time would fly catching up with Pete on the phone and having a cuppa at the cafe.
I checked into reception at 9.30am. It seemed like quite a small oncology department but was clean and new. I was greeted by a lovely nurse who seemed to know all the patients and was rushing around ensuring that the Prof had everything he needed. I was quite impressed. It’s very interesting seeing how different hospitals operate.
I was seen about half hour late but this isn’t anything compared to the Churchill in Oxford which has delays of up to two or three hours sometimes.
Prof Dalgleish asked how I was doing and discussed the vaccine site on my arm. It has been a week since I had it done and now it was hugely open and pusy. Last night I must have slept on it when it had a scab and was like a volcano. When I woke this morning all the scab and goop inside was stuck to my bed.. Gross. The volcano lump has gone and now I am left with a gaping hole like before. It’s really sore and I aim to keep it dry and untouched.
Prof explained about the injections I was there to pick up and start administering. He has provided me with three syringes containing interleukin 2. I have had this many a time at Dr Nesselhuts. The syringes contain a tiny amount and I am to inject myself in the tummy every night for three nights. I may experience flu like symptoms but they will pass very quickly like a light switch. I have never experienced flu like symptoms before but you never know? He also told me that the vaccination sites on my arm may be deactivated and become very pusy again. Oh well that’s the way it goes.. But he said that is great because it shows my immunity is really active.
He said he doesn’t really know what’s going to happen. This is a trial of sorts and he mainly deals with melanoma. So we just have to wait and see. I told him that I have a scan booked for the end of July so it will good to see what is going on since the ablation and all of the immunotherapy.
The idea is that the il2 stimulates my own natural killer cells. So that will enhance the ablation and the IMM101 vaccinations.
He told me that he had a melanoma patient who had some lesions ablated and that the imm101 and il2 combined made the other lesions in his body die. I am not sure if he has more than one success but here’s hoping so. He says he knows this works well in lung canSer patients too.
I don’t mind being a guinea pig. I have been for two years I just had it combined with conventional treatments too. But from what I know so far from my last scan is that having just these treatments the canSer isn’t progressing hugely and in fact some of the tumours were actually declining.
I left with an ice box containing the injections and set off on my way home. There was plenty of traffic because of the Wimbledon tennis tournament. Oh how I would like to be there watching a game.
It took me what felt like ages to get back. I felt pooped when I got in so I grabbed a blanket and sat in the back garden doing some homework.
This is where I am typing this blog from. It’s nice, clouds to break up the heat and a slight breeze.
I am making my second batch of Bravo Probiotic yoghurt or in the process of it. I started it yesterday and it is currently fermenting. I have run out of the last batch and I am getting used to its funky taste. My kitty loves the stuff. She has been licking my bowl clean every day. Pete has even tried it and says he doesn’t think it even needs sweetening of any kind. I definitely think it must be doing some good. I like to think my gut health and immunity are loving it.
I’m going to make some guacamole and a large mackerel salad for our tea then I’m not watching any football! I am putting my foot down! Ha ha! Oh who am I kidding.. I can’t say no to the Bear.. I’m going to have an early night.
Night all. X