Yesterday I drove early up to the hospital to have my bloods taken in preparation for starting chemo today. With the weather being so nice I drove in my convertible with the top down. It’s only in termperatures like we have been having when you can truly enjoy a convertible. Having short hair helps as it doesnt get messed up!
It was the quickest visit to hospital ever. The blood test area is governed by a ticketed numbering system. On walking in I got my ticket and before I even sat down my number was called! Yay! Having bloods doesn’t get any easier and I was left with quite a bruised arm. The phlebotomist said sorry so he knew he had done something wrong this time.
I called the oncology ward this morning and after being asked many questions bout my bowels, hands, feet and infections I was given the go ahead to start chemo.
It’s hot, hot, hot today again and I must admit I am looking a bit red faced. I normally have a cheeky hour before clients reading my book before I start to work but today is toooo much!
I’ve been getting more emails from people on facebook who have been in the same situation as me or have relatives recently diagnosed. I hope I can still offer help and encouragement. I have been feeling doubt and fear in my mind the last few days to a week.
I had a chat with Pete this morning. I don’t want to worry him but sometimes I need to sound it out. I get that sudden feeling of, Oh my god… The enormity of the situation and the fear that it could be forever more that I will have to fight this disease. I get scared that it may well win. When I say it out loud it feels silly as I’m in such a good position right now. I don’t want to miss these good healthy times and create something that may never happen. Pete as always sounds it out for me. He said that I am doing everything right and things couldn’t be better than they were a year ago. It’s ok to have moments and some negative thoughts but not to let them take over. It’s also a good time to keep the body guessing, make some changes and really ramp it up a bit. I know he is right. I don’t know why I have been fretting but it crept up on me and starting eating away at my happy thoughts. I really don’t want to think about it. It doesn’t serve any purpose and doesn’t help in the long run. I just get afraid that I will one day find it has spread then if it ever takes over I could be in a hospice on my last few breaths. I don’t want that- clearly. I just feel that it is all so scary. I am fighting for my life. Technically. Every day is a challenge and having no idea what is going on inside me really. I need to tap into my intuition and start listening to the real me and not my worrying head. Meditation really helps and when I think of all I am doing I realise how much control I have over my life, without having control… if that makes sense!
Yes well.. Like I say saying it out loud seems ridiculous. I know what I must do and how I should be thinking but I wonder sometimes if I want to create drama as there is something missing. I haven’t had any major urge to know what the future holds for a while now which is a breakthrough for me. I’ve been enjoying life. I guess that I sometimes feel sad because everyone else assumes they have ‘the rest of their lives’ to do things and this saying means many, many years to come. I know none of us know how long we have but it’s hard being told that you have an incurable disease and that it is life limiting and to eradicate that wording.
Peter and I heard the other day that one of his friends wife, who we used to see at the hospital, was suffering from leukemia after having quite a turbulent time, has been told, after having blood tests, that there is no sign of disease… Miracles do happen! I want that. I want to be told when I go for my next scan that there is ‘no evidence of disease’. I’m not sure if I will ever believe it but I really have to shake this lingering disease off. It doesn’t serve me in any way. I don’t need it. It’s amazing how the doctor’s words get stuck in my head. If only they would say it could be cured and then the day I am told there is no sign of it that I would believe it. I just need to get that gumption in my tummy to say to every cell in my body ‘I will be cured, I am canSer free’. I do need to re centre myself and really get to grips with my inner self. I must believe that I am safe and I am well. I want to be free…..
Right I need to remember the saying; Abandon Stinkin’ Thinkin’!